A WHO panel requests a registry of all research on the editing of human genes



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LONDON –

It would be irresponsible for any scientist to conduct studies on genetic engineering in humans, and a central registry of research plans should be put in place to ensure transparency, said Tuesday's experts from the Organization. World Health Organization.

After its first two-day meeting in Geneva, the WHO Gene Publishing Experts Group, which was established in December after a Chinese scientist said that he had modified twin baby genes, announced that he had agreed on a framework for the definition of future standards.

A central registry of all research on the editing of the human genome was needed "to create an open and transparent database of work in progress", and asked the WHO to start implementing place such a register immediately.

"The committee will develop essential tools and guidance for all those working on this new technology to ensure maximum benefit and minimal risk to human health," said Soumya Swamanathan, chief scientist for the team. WHO, in a statement.

DOSSIER - He Jiankui, left, and Zhou Xiaoqin use a computer in a laboratory located in Shenzhen, Guangdong Province, in southern China, on October 10, 2018. A Chinese scientist said that he had contributed to the creation of the first genetically modified baby in the world.

DOSSIER – He Jiankui, left, and Zhou Xiaoqin use a computer in a laboratory located in Shenzhen, Guangdong Province, in southern China, on October 10, 2018. A Chinese scientist said that he had contributed to the creation of the first genetically modified baby in the world.

Last year, a Chinese scientist claimed to have changed the genes of twins.

The news of births has sparked global condemnation, in part because it has raised the ethical specter of so-called "designer babies" – in which embryos can be genetically engineered to produce children with desirable traits.

Scientists and ethicists from seven countries last week called for a worldwide moratorium on the genetic modification of eggs, sperm or human embryos, which would give birth to such genetically modified babies, claiming that " this could have permanent and possibly harmful effects on the species ".

In his statement, the group of WHO experts said that any work of editing human genes should be carried out solely for research purposes, should not be the object of Clinical trials on humans and should be conducted in a transparent manner.

"It is irresponsible for the moment that anyone pursue clinical applications of human genome line editing."

The Director General of WHO, Tedros Adhanom Ghebreyesus, welcomed the initial plans of the group. "Gene editing is an incredible promise for health, but it also involves ethical and medical risks," he said.

The committee stated that it wants, over the next two years, to create a "global governance framework" for national, local and international authorities to ensure the advancement of science related to editing of the human genome within agreed ethical boundaries.

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