he is afraid of being burned alive when he receives sunlight, and that is the reason

Due to a very rare disease, almost all light sources can cause burns and an immense unbearable.

The Dominican Dominican Fatima Perez is 54 years old and has spent her whole life fighting xeroderma pigmentosum (XP), a very rare genetic and hereditary disease that affects the skin. The main cause of the disease is a defect in your body's ability to repair the DNA cells. Those who have been damaged by ultraviolet radiation and some artificial lights.

Because of this serious illness, she was forced to stay in the house for years and not go out on a cloudy day. To fatima almost any source of light, even a wall lamp, can cause unbearable pain. She decided to share her dramatic story in a letter posted on the foundation's website, which she created to help people affected by the same illness.

He asked a last wish, he answered and died 3 days later of a serious illness.

In 1998, Fatima was first informed of the nature of her illness as many doctors ignored her rare condition, aggravated by radiotherapy treatments that caused severe skin burns. Similarly his exposure to the sun of the Dominican Republic made him lose one eye and be almost blind to the other.

It was so that she understood that local medicine could not help her and decided to emigrate to the United States, the country where her brother lived. He spent a few years and now lives in Connecticut, and can not go out without wearing big black glbades, gloves, a cloth hat with sunscreen and a coat weighing over two kilos. But she, no matter how hot that day, does not want to give up.

His struggle led him to create the XP Group non-profit foundation. Light of Esperanza, which aims to raise public awareness of xeroderma pigmentosum and to seek resources to help Latin American families affected by this serious and complex skin disease.