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The case shocks the world. Since birth, a little boy has no skin and stays in an incubator. Images.
The case generates a lot of turmoil in the United States. A baby has been hospitalized since birth in January of this year. It happens that Ja & bari Gray was born without the skin.
It should be noted that doctors are trying to decipher the diagnosis but can not yet identify them.
The raw story of a woman whose skin rotted because of the oven cleaner
For this reason, they clbadified it as a rare disease.
Failed diagnosis
At first, he was diagnosed with "skin aplasia", a rare conbad absence of the skin.
After being transferred to the Texas Children's Hospital, specialists diagnosed him with "epidermolysis bullosa", a rare connective tissue disorder the skin Extremely fragile and subject to blisters.
The little one the skin in the head and part of the legs, but not in the arms or torso. "Right now, they really want him to stay comfortable," said his mother, Priscilla Maldonado, who performs genetic testing with her husband.
"It could take two or three weeks before they give us an answer.They do not want to take care of my son for the wrong reason," said the woman, adding, "I could have it in my arms twice, but you have to wear a gown and special gloves. the skin a the skin"
The treatment
To improve their quality of life, the doctors plan to have Bari undergo an operation of cutting a scar tissue that reaches the chin of the thorax. Taco Cabana, where the father works, provides economic support and helps the family through GoFoundMe.
"Even if it survives, we do not know what to expect in the future.We only have to pray every day.Every day is a blessing," said the mother.
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