Strong Images: Parents Can not Kiss Their Son Because He's Born Without Skin

April 18, 2019

Images can affect sensitivity. Although the child has still not been diagnosed, doctors believe that it is a very rare disease. He has been in the hospital since January.

In the United States, a strange case arouses emotions after the announcement of the hospitalization of a baby since its birth, in January 2019. The little one is calling Ja & Gray bari and was born without skin.

Although doctors are still trying to decipher the diagnosis, they still can not identify it. That's why they're already talking about a very rare disease. Mostly he was diagnosed with "Aplasia cutis", a rare conbad absence of skin.

After being transferred to Texas Pediatric Hospital, specialists diagnosed him "Epidermolysis bullosa", a rare genetic disease of connective tissue that leaves skin extremely fragile and prone to blisters.

The little one has skin on his head and part of his legs, but not on his arms or on his chest. "Right now, they really want him to stay comfortable," said his mother, Priscilla Maldonado, who performs genetic testing with her husband.

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"It could take two or three weeks before they give us an answer.They do not want to take care of my son for the wrong reason," said the woman, adding: "I could have it in my arms twice, but you have to wear a gown and special gloves.There is no skin-to-skin contact."

He worked without stopping and the stress left him blind, deaf and comatose for a month.

Now the doctors have in mind to perform on Ja & bari a an operation to cut scar tissue that connects the chin to the minor's chest. L & # 39; Company Taco Cabanawhere the father works, provides financial support and helps the family through GoFoundMe.

"Even if it survives, we do not know what to expect in the future.We only have to pray every day.Every day is a blessing," said the mother.