The life of a woman who is "consumed" by her giant tumors on her legs and hips and fears that "they are constantly growing up"

The woman is 28 years old and her life is "consumed" by her giant leg and hip tumors. He fears that the mbades of his skin "never stop growing".

Nail Women He has giant tumors in his legs and hips and fears that the mbades will keep growing.

Karina Rodini is 28, she is from Sao Paulo, Brazil. He was diagnosed with neurofibromatosis type 1 (NF1) at the age of two years.

This disease only invaded him during his teens and school stalkers also noticed him.

He now has tumors that weigh 40 kg and for this reason he can not work.

The doctors failed to control the debilitating mbades, which led Rodini to seek expensive medical help in India.

Karina said, "I'm afraid that the disease will continue to develop and that it will reach such a point that I will not know what to do, my left side is completely affected."

He also stated that this condition affected his vision and he had trouble seeing with his left eye.

Karina has undergone seven surgeries and procedures to remove tumors, but they continue to grow more and more. You can only eliminate about one kilogram of meat in each procedure because it loses a lot of blood.

In October of last year, she was operated on in a public hospital and her legs doubled.

She can not find clothes that fit her well and has trouble sleeping because she feels uncomfortable. It also deals with severe scoliosis, where the spine is curved.

Neurofibromatosis is a genetic disease that causes tumors to grow along the nerves. The severity of the symptoms may vary. It usually appears during childhood. In most cases, the skin acquires colored spots, freckles and soft tumors.

Rodini began her illness with dark spots on the skin when she was a child and evolved into adolescence.

She said: "And he continued to grow, grow, grow and grow.I need surgeries to remove so much [de los tumores] as much as possible and as soon as possible, so that it does not spread throughout the body ".

Karina stated that she had suffered numerous harbadment throughout her life due to her illness and that her love life had stagnated: "I learned to deal with prejudice. I was suffering more. I treat him better, prejudices will always exist.

From several people, with several problems, you know. It can be with mine, with someone who has darker skin or with a disabled person.

Karina also can not work: "I started working at 16 and I have been working ever since, but because of many doctor visits, surgeries and exams, I was fired from my job previous.

Now, nobody wants to give me a job just because of my appearance. Wherever I go, people are watching me. "

Many people with this disease end up with problems such as anxiety because of the uncertainty of their condition.

The woman confessed: "It can develop in other parts of the body, inside and out, so it's a surprise box, you never know what will happen with neurofibromatosis . "

Currently, there is no cure. Treatment includes surgery, medication, physiotherapy, psychological support and pain management.

Rodini said that in Brazil, there were not many specialized doctors, so he hopes to receive treatment abroad. He has found a hospital in India that is ready to try to manage all its growth.

Her family has created a GoFundMe page hoping to raise money for a treatment that could change her life.

Fatima Mohamad Abu Ali, his mother, said that when her daughter's condition progressed, her family did not realize how serious it would be: "We did not know what it was. did not know how to explain it, so I thought that they were like moles that could disappear.

We saw that their moles became bigger and then we thought we needed to get more information, investigate and see what could be done. "

Nevertheless, she revealed that her daughter was very optimistic about life: "Karina is a very active girl, she loves life, she likes to wear makeup, go out, she likes to play with children".

Karina said: "In the last year, when the disease hit me the most, I felt shy to expose, take pictures, to be registered. I try to overcome my insecurities.

I try to expose myself more, especially because many people have the same illness as me. "

She thinks that by talking publicly about her illness, she can help other people with similar illnesses and show them that despite their health, they can lead a normal life: "You have to show yourself, you must talk about the disease, you do not need to be ashamed.

You do not have to stay hidden and depressed at home because you have an illness, you do not have to think that there is no solution, because there is one, "he said. concluded.

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