The strange case of the baby who is born without skin and who has not been diagnosed yet

The case is stirring the public opinion of the United States. A baby stays in the hospital for the first three months of life after being born without skin, and doctors are always looking for a diagnosis and a possible care plan. The baby calls Ja bari Grayand is hospitalized since 1 January at the San Antonio Methodist Hospital, according to a report from local media San Antonio Express-News.

Because he lacks skin on most of his body, with the exception of the head, he was diagnosed primarily with "aplasia cutis ", a rare conbad absence of skin. However, his case is still under study.

A journey of misdiagnosis

After being transferred Friday to Texas Children's Hospital in Houston, specialists had diagnosed him "epidermolysis bullosa", A rare genetic disease of the connective tissue that leaves the extremely fragile skin and subject to blisters and tears, even at the slightest trauma or fiction.

Ja bari now has skin on the head and part of the legs, but not on the arms or torsoSo, he is constantly taking care of changing his clothes and putting on ointments to prevent infections, said his mother Priscilla Maldonado. "Right now, they are really focusing on your comfort"he said.

She noted that she and her husband, Marvin Gray, were performing genetic badysis to confirm the diagnosissince the disease is hereditary. "It could take two or three weeks before they give us an answer.They do not want to take care of my son for a bad cause," Maldonado said.

"I could have it in my arms two timesbut you have to use a special gown and gloves. There is no skin-to-skin contact, "Priscilla said.

Doctors plan to perform an operation to cut the scar tissue which connects the chin of Ja & bari to his chest. His eyelids remain attached from birth. Medic-Aid covers part of the child's medical costs, said Maldonado, and the family receives support from the company Taco Cabana, where both parents work. An account has also been created in GoFundMe to help the family.

Maldonado said the doctors had not specified how much longer Jaar should go to the hospital. "Even if it survives, we do not know what awaits us in the future"We only have to pray every day, every day is a blessing," he finally said.