Hayley Wyatt suffered the most painful condition on Earth

When they finally arrived, the paramedics rushed the family outside while they were trying to shake Hayley with pallets of defibrillators

"When they came out and told us that She was dead, we fell to the ground.

Hayley spent the last four years of her life battling Complex Regional Pain Syndrome (CRPS) – a chronic disorder of the system nervous that may be more painful

The McGill Pain Index describes it as being more distressing than the amputation of a finger or toenail without painkillers.

CRPS is an invasive neurological disease that causes irregularity of the nervous system and the issuance of signals to a limb. it's me no acute pain when she is not.

If the condition is not detected early, it can often be incurable and the intense pain causes such frustration, anxiety and depression. The CRPS syndrome is described by experts as the most painful state on earth "srcset =" https://static.ffx.io/images/$zoom_0.691%2C$multiply_0.7252124645892352%2C$ratio_1 .776846% 2C $ width_1059% 2C $ x_0% 2C $ y_4 / t_crop_custom / t_sharpen% 2Cq_auto% 2Cf_auto / 9a606b35b60f67259311a1d76de9835699cfaccc "itemprop =" image "/>

Hayley lived with this condition until her death in January of this year.He was 21.

Her distress began after what appeared to be a trivial accident in 2014: slipping on a puddle of water and injuring his arm

Wyatt says that Hayley's initial treatment worsened the situation and left his arm "

" We received treatment, and a year before it was diagnosed with CRPS. "

This would be the beginning of a frustrating relationship with the profession Health Benefits and the New Zealand Accident Compensation Society (ACC) (19659002) The CRPS spread to Hayley's leg, causing painful open wounds that were infected.

"She was so afraid to go to the hospital because she knew how she was going to be treated.

The Wyatt family filed a lawsuit against the Bay of Plenty District Health Board alleging 35 cases of negligence on the part of Hayley's medical team.

The official complaint includes allegations Hayley is denied entry into pathology because his leg was "leaking too much" and that a nurse told him that his "leg stinks".

In response, Bay of Plenty DHB said, "We have been working with Hayley's family for a short time after his death. understand and respond to their concerns about the care they have received and we continue to do so.

In the last four months of her life, the pain was the worst. But Hayley has not been the subject of a pain review, although the Wyatts have "begged" Hayley's medical team. "

The Bay of Plenty DHB has since admitted to the family that Hayley had not undergone pain examination." 19659008] Hayley needed a constant supply of dressings to cope to the three liters of fluids that ran out of her leg every day.The delivery of the bad bandages meant that she was waiting months to get the right care – the correct bandages only arrived a few days before

" We had to chase the doctors for the prescriptions, and then chase the VAC to sign it. Her care and medications were constantly delayed and it could have been different for Hayley had they helped her earlier, "says her mother.

" We have advocated for more care before Christmas, but we were told it was the holidays.

VAC paid $ 10,000 (CAN $ 9100) for Hayley's funeral and made a check for $ 25,000 to the family to make up for the 24-hour care they provided to her during last months

. According to the CAC, child care, equipment, housing modifications and nursing care, as well as many DHB interventions, were in place. Unfortunately, Hayley often resisted the fact that nurses and health professionals visited her at home, and when she saw them, she did not often follow their care recommendations

"It affected our ability to ensure the required level. Having to treat her leg injuries when she was at home and making sure that she regularly received the large number of bandages she needed, given that they needed to be ordered by a registered nurse. But Wyatt says Hayley was resistant because the nurse, contracted by HealthVision VAC, had no knowledge of CRPS

HealthVision told the Wyatt family in a letter of apology that " CRPS are so misunderstood by health professionals. ", his death would be used" to educate and educate the wider team of nursing specialists in the community. "

" She should not to be dead, "said Wyatt. "I do not want anyone else going through what we went through."

"We want professionals to recognize their mistakes because I do not want anyone else going through what she has gone through." [19659035] The most viewed in the world

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