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CHICAGO – Patients with hypertrophic cardiomyopathy who participate in thrill-seeking activities, such as rollercoasters and jet ski after diagnosis, have had mild symptoms, although significant events include an automatic defibrillator shock Implantable and syncope, are rare, according to data presented to the American Heart Association Scientific. Sessions.
"Lifestyle education is an integral part of HCM management, and one of the issues frequently raised by patients at our facility was to know if it was prudent to continue the activities at the search for thrills they enjoyed before, " Nikolaos Papoutsidakis, MD, PhD, professor of cardiology at the Yale University School of Medicine, Cardiology today. "We realized that there was little data on this topic, so we set up this study to add a point of discussion between the doctors and their patients."
The researchers badyzed data from 633 patients (mean age, 51 years old, 351 women) with hypertrophic cardiomyopathy.
Patients were invited to participate in the study through an anonymous online survey that collected information on participation in an activity seeking thrills and badociated symptoms. Thrill-seeking activities have been defined as jet skiing, roller coasters, bungee jumping, rafting, paragliding, abseiling, motor racing, kayaking and canoeing. kayaking, snowboarding, skydiving and jumping at the base.
Of the patients in the study, 556 reported having participated in thrill seeking activities and 331 patients continued to participate after the diagnosis.
Patients had a high risk of arrhythmia: 45% after implantation of ICD, 24.4% with daily symptoms, 31.4% with a history of ventricular tachycardia and 13.8 % after an impact with the DCI.
7,994 thrill-seeking activities were undertaken and 33.6% of patients experienced minor events such as dizziness, nausea, palpitations or chest pain.
Significant events during activity or 60 minutes after participation were reported by 0.02% of patients. A CIM shock was also reported during this period.
"For lifestyle changes in HCM, we support a shared decision-making approach," said Papoutsidakis in an interview. "Physicians can use this data to inform their patients of possible risks – in this case, probably very small risks. Patients can then make a more informed decision about the risks and benefits of participating in the activities they enjoy. " – by Darlene Dobkowski and Erik Swain
Reference:
Papoutsidakis N, et al. Poster Su2110. Presented at: American Heart Association Scientific Sessions; November 10-12, 2018; Chicago.
Disclosures: The authors do not report any relevant financial information.
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