Young people who find in social networks an "escape valve" to fight against cancer | Welfare

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Last August, Guilherme Pagnoncelli, 28, discovered that cancer, born in the stomach, had progressed and reached other organs. The young man was informed that he would have little time to live. As soon as he left the hospital, he posted videos on his Instagram regarding the diagnosis. A little over 4,000 people accompanied him on the social network. In less than 24 hours after the report, his profile exceeds the bar of 260,000 followers.

Gui, as he is known on social networks, discovered the disease in July 2012, at the age of 22 years. He has been diagnosed with stomach cancer, type adenocarcinoma, one of the rarest and most aggressive forms. The young man underwent surgeries and chemotherapy sessions. Months after completing the procedures, found that the cancer had also reached the lungs.

In 2016, still under treatment, doctors reported that the young man's esophagus had also been attacked by the disease. In August 2017, Bill learned that treatments no longer produced the desired results. "They said I would only have a few months to live," he says.

The boy, who until then had the habit of being discreet about the disease, spoke openly about the subject. "When I left the doctor 's office, in the heat of the moment, I recorded a few stories (a little video tool and Instagram photos) telling what I had come up with. learn.

The repercussion of history led the boy to make several publications on the disease, its treatment and its daily life. "I believe that it is necessary to spread the disease so that people can take care of themselves." The cancer is silent and it is necessary to talk about it. a greater intention is to alert, "he told BBC News Brazil.

The boy is one of many young people who face cancer and share the fight against the disease in social networks. Diagnostic and treatment reports have become commonplace on the Internet.

For the head of the psychology section of the National Cancer Institute (Inca), Monica Marchese, interaction in social networks makes that young people with the disease feel less lonely.

"They feel that they are doing something with this moment of life, they are out of a pbadive position in the face of the illness and the losses that it entails, so it has become commonplace for young people to create networks, blogs, so they are not just hostages of diseases and treatments. "

According to the Inca, there is no data on young people facing to cancer in Brazil, just an estimate of the number of Brazilians in general who must be diagnosed this year: 600 000, about 170 000 cases related to skin cancer. The badysis does not specify the age of the patients.

Social networks as "escape valve"

The most famous case among young people who shared the fight against cancer in networks is the model Nara Almeida, 24 years old.

For nine months, she fought hard against stomach cancer. Before, she published beauty tips, recorded trainings at the gym and talked about diets. The girl had about 400,000 followers on Instagram. After the diagnosis and reports on the fight against the disease, the number of people who accompanied it reached 4.4 million, recorded in May.

For the young woman, social networks were the way she had found better management of diseases and treatments. In her profile, she celebrated every improvement in her condition and regretted that her health was deteriorating. "God, once again hold my hand, my afflicted soul is asking for your attention, I have reached the most difficult level here.Help me to conclude," writes Nara in one of his latest publications, made shortly before start of immunotherapy treatment.

The most famous case among young people who shared the fight against cancer in nets is that of the model Nara Almeida, 24 years old (Photo: Reproduction / Instagram) The most famous case among young people who shared the fight against cancer in networks is that of the model Nara Almeida, 24 years.The most famous case among young people who shared the fight against cancer in networks is the model Nara Almeida, 24 years (Photo: Reproduction / Instagram) "data-src =" https://s2.glbimg.com/O4jdt4xxXMjyMu8yHyzQSsKZGUY=/0x0:624x351/984x0/smart/filters:strip_icc()/i.s3. glbimg.com/v1/AUTH_59edd422c0c84a879bd37670ae4f538a/integrated_photos/bs/ 2018/7 / d / 69xiDGQAaqggAbVkgDRg / 2-most-famous-case-among-the-young-who-have-fought-against-cancer-in-them The most famous case among young people who shared the fight against cancer in nets is that of the model Nara Almeida, 24 years old (Photo: Reproduction / Instagram) </source></source></source></source></source></picture> </div> </p></div> <div clbad=

Nara died May 21. He did not resist the complications of the disease and the available treatments did not have any other effects.

The engineer Pedro Rocha, her husband, said that social networks were fundamental during her fight against cancer. "Nara used the nets as an escape valve, she could evacuate, meet people who had the same problem, ask for help and help other people, she also used this means of communication to not feel alone when she could not leave, "he says.

Through social networks, footballer Alexandre Pato, currently in Tianjin Quanjian, met the Nara affair. At the end of April, he volunteered to pay six months of immunotherapy for the young woman. Before the help of the player, the model even recorded a video asking that she be hired to work as a digital influencer, so that she could afford the drugs – which cost 18 $ 000 per dose, to be taken every 21 days. "She had time to take only two doses (paid for by Pato)," says Rocha.

In addition to messages of support, Nara was also criticized for exposing the disease. "All those who choose to open their lives in a social network must be able to handle rejection and different opinions, but it's important to know when to book a little," says Nara's husband.

The engineer believes that the model could help other people. "Nara has shown that it's not necessary to be ashamed to go through such a situation because this disease is more common than we would like I've met a lot of people who are went to know more about their health after knowing its history. "

Social networks are considered important tools for Gui Pagnoncelli. Through a "virtual chat," he raised $ 350,000 to perform a multi-organ transplant in the United States – stomach, intestine, pancreas and liver.

While he was dealing with sickness and sharing daily life in the nets, he struggled to maintain the plans he had for himself. One of the dreams was realized at the end of last year: the conclusion of the faculty of physiotherapy. Gui started the course shortly after completing the first phase of cancer treatment. "At times, I could not imagine finishing my degree, my CBT was prepared between chemotherapy and another. Nara received criticism from anyone who considered her to be too expansive of her hospital routine (Photo: Reproduction / Instagram) Nara received criticism from anyone who thought she was going too far from her routine. 39; hospital. ) "src =" data: image / jpeg; base64, / 9j / 4AAQSkZJRgABAQAAAQABAAD / 2wBDAAMCAgMCAgMDAwMEAwMEBQgFBQQEBQoHBwYIDAoMDAsKCwsNDhIQDQ4RDgsLEBYQERMUFRUVDA8XGBYUGBIUFRT / 2wBDAQMEBAUEBQkFBQkUDQsNFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBT / wgARCAAOABkDASIAAhEBAxEB / 8QAFwABAQEBAAAAAAAAAAAAAAAABwYFCP / EABcBAAMBAAAAAAAAAAAAAAAAAAIDBAX / 2gAMAwEAAhADEAAAAd0RWIfPttV8A6TaH EABsQAAIDAQEBAAAAAAAAAAAAAAIDAQQFABMG // / // 9oACAEBAAEFAql03xboBM5d1bZ9 + G2QWNzSY53zzmlteod 8QAGBEBAAMBAAAAAAAAAAAAAAAAAQACERL / 2gAIAQMBAT8Bbjoyl + JZ / 8QAGBEBAAMBAAAAAAAAAAAAAAAAAQASITH / 2gAIAQIBAT8Bomke7P / EACUQAAECBAUFAQAAAAAAAAAAAAIBAwARITEEEhMiIxAyNHGhkv / aAAgBAQAGPwLiYOiym5s Xh5xUNXdTknYVrSMEINK1ptCO5e6l + + gr8g8OYjQp5kS / uMh5JAM0pHjs / mP / xAAfEAEAAgEEAwEAA AAAAAAAAAABABEhUWGBkRBxscH / 2gAIAQEAAT8hblaypR2WXUW9HYlzlvHrqGv28iyNdYAVxw0 / ZTYhhnRujQmIS5yPzx3 / 2gAMAwEAAgADAAAAEItP / 8QAGREBAAIDAAAAAAAAAAAAAAAAAQAxEZGh / 9oACAEDAQE / EMIarUUwdn // xAAZEQACAwEAAAAAAAAAAAAAAAAAAREhcZH / 2gAIAQIBAT8QqP3pNyaz / 8QAHRABAQAC AwADAAAAAAAAAAAAAREAITFBUWGR8f / aAAgBAQABPxBLdE5BdiqcQD7gTZS6ahHXK0oWN2n08kiKAJdu6xM X95YknbfJ9eProyb5OLNgdweXDiQs4eQbNTqAZ + + Az // Z "/> Nara received criticism from those who considered that it was excessive exposure of his routine to the Nara hospital was criticized by all who thought she was going too far in her hospitable routine.

Nara receives criticism about who felt that she made an excessive exposure of her hospital routine (Photo: Reproduction / Instagram)

The young man is grateful for the support that He receives in the networks. However, he says the show is no longer as positive as it was at the beginning. "Today, people think that my life is a soap opera in which I have to spend every day another chapter: if I decide to lock myself up and stay a little lonely, I will soon receive a lot of messages from me. asking where I am and I feel a bit overwhelmed. "

He, who currently has over 245,000 followers on Instagram, reports that one of the situations that bothered him the most occurred to him when he was hospitalized for chemotherapy." Two people are climbed into the bed where I was and asked to take a selfie with me. "It was very strange and new to me, and they started treating me as if I were famous. [19659009] While regretting the lack of privacy, Gui maintains daily publications on social networks.Share the treatment and detail each difficulty.The young man often comment on the constant pain, because the remedies have not no more effects as before In many cases, Gui must be sedated with anesthetics.

Recently, the boy started a new treatment with chemotherapy for an indefinite period, because of the advanced stage of the malady e. "Even with all that I've experienced, I've always had a very concentrated emotion, I'm just crying or I'm going through the sad day, always trying to smile and take the life as I can, despite my limitations. "

The desire to lead a life in the best way possible in the middle of cancer treatment is also one of the goals of student Isabel Costa, 21 years old. In July of last year, she discovered a nodule in the left bad that was going to be an intermediate stage bad cancer. "Nobody expects to hear such news at the age of 20. It was not easy at all."

She was slow to accept the diagnosis: "Every day I woke up and I thought it was a nightmare."

Only after starting chemotherapy two weeks later, Isabel realized that her life was undergoing changes. "It was a big shock."

In all, there were 16 chemotherapy sessions. She was in Law's fifth term, but she temporarily closed and resumed her studies earlier this year. The young woman planned an exchange for Portugal in January, but she had to give up. "My life has completely changed, I had to stop all the activities I did."

One month after the start of the fight against cancer, Isabel decides to talk about it on her social networks and creates a blog about it. "My friends already knew it because I had warned them shortly after, but I decided to create the blog because I wanted everyone to know my story, not the rumors, I did not want that. They think I was dying, "he explains.

His first publication resonated among friends and strangers. She, who currently has more than 6,000 followers on Instagram, has received several messages. "I have never received criticism, only messages from people, known or unknown, who wanted to show their support or say that my publications inspired them," he says.

In networks, she shared motivating publications and also the most complicated moments of treatment. For the young woman, the most difficult parts were the swelling caused by drugs – she took 18 kilograms -, hair loss and bad surgery. "The mastectomy was the one that affected me the most because my bads were completely removed." "I had an immediate reconstruction, but there were scars, even with prostheses."

Isabel currently has oral chemotherapy, in which she takes six tablets a day for 14 days and then for seven days , he pauses in the remedies and then comes back.The initial part of the university treatment should be completed in August.Then for five years he will be in remission – when there is no sign of cancer, but it still can not be said that he will not come back.With monthly consultations, the doctor will evaluate the health of the woman.

For Isabel, despite the difficulties, the fight against cancer had a positive side. "I have met a lot of nice people and I have learned a lot, mainly through social networks, I have participated in several events to learn more about the subject and j & # 39; 39, I created, with a friend who also had trouble adie, a support group. cancer patients. "

In social networks, there are also stories of young people who have battled cancer, completed the treatment and are now in the remission phase.This is the case of the communication badyst Anna Narita, age 25. In December 2011, he discovered cancer in the thymus, a gland located between the lungs, during which time she was treated with chemotherapy, underwent surgery, became bald and suffered depression. "My biggest battle was the acceptance of the disease."

The first time she had cancer, she even did publications on the subject on social networks, but did not continue the reports. "I was not psychologically well, it was very complicated, I published and I felt more exposed than relieved and I 've abandoned, "he says. [Photo: VITOR MANON / ARCHIVES PERSONNELLES]" Anna Narita has finished the treatment and is in a phase of remission of the disease "(Photo: VITOR MANON / PERSONAL ARCHIVES)) "src =" data: image / jpeg; base64, / 9j / 4AAQSkZJRgABAQAAAQABAAD / 2wBDAAMCAgMCAgMDAwMEAwMEBQgFBQQEBQoHBwYIDAoMDAsKCwsNDhIQDQ4RDgsLEBYQERMUFRUVDA8XGBYUGBIUFRT / 2wBDAQMEBAUEBQkFBQkUDQsNFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBT / wgARCAAOABkDASIAAhEBAxEB / 8QAGAAAAgMAAAAAAAAAAAAAAAAAAgYDBAX / xAAUAQEAAAAAAAAAAAAAAAAAAAAA / 9oADAMBAAIQAxAAAAGNQ1wKSo0kf // EAB0QAAICAgMBAAAAAAAAAAAAAAEDAgQABQYSFRP / 2gAIAQEAAQUCctcIcdRYfbu / dMfXhjtwCOO9zZ2GtMD6Jz // xAAUEQEAAAAAAAAAAAAAAAAAAAAQ / 9oACAEDAQE / AT // xAAUEQEAAAAAAAAAAAAAAAAAAAAQ / 9oACAECAQE / AT // xAAkEAABBAEDAwUAAAAAAAAAAAADAAECEQQSITETM5EiMoGSwf / aAAgBAQAGPwKQxPPq8ap7V8LMHmFlEkW97 / ieTuOcWbe3pdiflAEWGokvT1W5WVMs9ZMixWzVVNaAQ5XNLd3biPhdof1X / 8QAHRAAAgMAAgMAAAAAAAAAAAAAAREAITEQYVGBkf / aAAgBAQABPyFTJFNChtsbLNH4wxCx9HsvOEF FFAKQHfma1LSUxU9pJmUuCv / aAAwDAQACAAMAAAAQQ0 // xAAUEQEAAAAAAAAAAAAAAAAAAAAQ / 9oACAEDAQE / ED // xAAUEQEAAAAAAAAAAAAAAAAAAAAQ / 9oACAECAQE / ED // xAAdEAACAwEAAwEAAAAAAAAAAAABEQAhMUFR0fBh / 9oACAEBAAE / EGDYAZPqBlba gF6iCBAnFmCIVgXYaMUCODsdV4n2PUUQ6TgEM1h8fsEKAQMMIKyTA67g7OKDCsVDA2 7PG + + 5 / 9k = "/> Anna Narita have completed their treatment and are in the remission phase of the disease (Photo: VITOR MANON / PERSONAL ARCHIVES)" title = "Anna Narita has concluded the treatment and is in phase of remission of the disease (photo: VITOR MANON / PERSONAL ARCHIVES) "date-src =" https://s2.glbimg.com/rcT_RitbqYtZZKsw1C46GUXg7Xs = / 0x0: 624x351 / 984x0 / smart / filters: strip_icc () / i .s3.glbimg.com/v1/ AUTH_59edd422c0c84a879bd37670ae4f538a / internal_photos / bs / 2018 / I / J / okcVm9S5yDmGVq82Xhzg / 5vitor-manonanna-narita-concluded- Anna Narita has completed the treatment and is in the remission phase of the disease (Photo: VITOR MANON / PERSONAL ARCHIVES) [19659046] Anna has completed the first phase of treatment and pbades or to do monthly follow-ups. Last year, four years after the end of chemotherapy sessions, the disease has returned, now in the abdominal cavity. "It was a fear because I had no signs of cancer, and it recovered, even more aggressive, this time I was stronger, even though fear still exists . " </p> </p></div> <div clbad=

She resumed treatment in July 2017. She claims that her maturation led her to comment on the disease on social networks. "I started writing notes when I was more introspective, these notes became text and some of them, by way of relief, were posted on my social networks, in which I was speaking. feelings that tormented me, "says Anna. just over 1,700 subscribers on Instagram.

She preferred not to portray the daily routine of treatment and to only publish publications on the crises that she had suffered after having overcome them. This has helped me reduce my own expenses to be healthy while reducing the burden for those who have better treated my illness and myself.

Last December, Anna closed the second treatment. She is again in a period of remission and is doing tests to make sure the cancer has not come back. "I do not like to romance my illness by saying that everything worked out in the end, I remember all of my suffering and it would not be fair to forget them, but I let these experiences be the best version of me- even. necessary, "he says. Anna Narita celebrating the end of cancer treatment (Photo: Reproduction / Instagram) "Anna Narita celebrating the end of cancer treatment". ; base64, / 9j / 4AAQSkZJRgABAQAAAQABAAD / 2wBDAAMCAgMCAgMDAwMEAwMEBQgFBQQEBQoHBwYIDAoMDAsKCwsNDhIQDQ4RDgsLEBYQERMUFRUVDA8XGBYUGBIUFRT / 2wBDAQMEBAUEBQkFBQkUDQsNFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBQUFBT / wgARCAAOABkDASIAAhEBAxEB / 8QAFwABAQEBAAAAAAAAAAAAAAAABQYEB // EABUBAQEAAAAAAAAAAAAAAAAAAAME / 9oADAMBAAIQAxAAAAGnO1MTL0ilIapL / 8QAHBAAAgICAwAAAAAAAAAAAAAAAwQBAgASBRAW / 9oACAEBAAEFAp1ZXA3AOUqS0W2wqlQD8wvRoSm3X // EABcRAAMBAAAAAAAAAAAAAAAAAAEQEjH / 2gAIAQMBAT8BoYv / xAAXEQEAAwAAAAAAAAAAAAAAAAACARAx / 9oACAECAQE / AZC2v EACMQAAECBQMFAAAAAAAAAAAAAAIAAQMEERJBEDEyEyEiUXH // / + 2gAIAQEABj8CdoZ2HVwrTZ1KS5vdEvCpNlN9WUEPl5dcu aqXnRIgjCYvY3DdXXZ9af / xAAcEAEBAQEBAAMBAAAAAAAAAAABESEAMVFxkbH / 2gAIAQEAAT8hC7hTUa / zpfcgSqb29LPB31 / HJG3oRWsyYXlFT + iIIDp70YZTxzfnv // aAAwDAQACAAMAAAAQfc // xAAXEQEBA QEAAAAAAAAAAAAAAAAB8BAR / 9oACAEDAQE / EATqjP / EABcRAQEBAQAAAAAAAAAAAAAAAAEREDH / 2gAIAQIBAT8QUR0lz // EAB8QAQADAAIBBQAAAAAAAAAAAAEAESExYVFxkbHR4f / aAAgBAQABPxBmpvxyFHFBd + YRA0kWaQwHc9ZZCgvnd6LlP2 / UOgLwHOrrgVehsZPAgx30Td8zTGNW0ekleD2n / 9k = "/> Anna Narita Celebrating the End of Cancer Treatment (Photo: Lecture / Instagram)

Anna Narita Celebrating the End of Cancer Treatment (Photo: Reproduction / Instagram) [19659047] Lívia Oliveira, 19, a student at the university, also pbaded the cancer. During treatment, she detailed, in social networks, the fight against the disease. The girl had non-Hodgkin's lymphoma, which appears in the lymphatic system and reaches the body's defense cells. He was diagnosed at the age of 18 last November. "It was shocking, because I was starting life, I had just studied law and I was not expecting such news."

The day after the discovery of the disease, she began treatment because the cancer was considered advanced. "Everything was very heavy, I did 100 hours of non-stop chemotherapy every 21 days," he says. She underwent four surgeries, was hospitalized at the USI, suffered a 12-minute cardiopulmonary arrest, and was able to stay three days in an induced coma.

Livia recovered and in December had her first discharge from the hospital. She scratched the little hair she had left after much of it fell during the treatment. Then he made a post on Instagram. "I felt that I needed to share with everyone the miracle that God would do in my life," he says. On Instagram, Livia currently has 10,400 subscribers, most of whom came after starting to talk about the disease.

One of the most special moments for her was a publication made on April 13, when she announced the end of treatment. "Today I just want to shout to everyone that God is wonderful and healed me," he wrote in the post. In the comments, several disciples celebrated with the young woman.

Livia is currently in remission and monthly follow-up to ensure that there are no more signs of the disease in her body. "I do not let the fear of cancer come back that prevents me from living."

Supporting Disease Control

For Psychologist Monica Marchese, there is still a lot of misinformation about how to treat people with cancer, causing many people to feel sorry for those who face the disease. "The information across the networks should help minimize the stigma around that," he says.

According to Marchese, one of the reasons that youth reports attract people is the fact that the situation drives a lot to think about it. "This interest comes from the patient's life story, it can have an effect" could be with me or my child, "he says.

Through experience gained during the two periods when she faced the disease, Anna Narita ordered that the relatives, friends and the people accompanying the patients in the networks show empathy.

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