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The parents of the youngest cadet, Cristóbal Farías, who suffers from spinal muscular atrophy filed an appeal for protection before the Penquista appeal court . asking state health agencies to import the drug Spinraza, the only one that treats the disease and has a value approaching $ 500 million the first year.
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The highest court in a decision shared, decided that economic considerations should not be involved when the right to life and to physical and mental integrity are compromised. of one person, for whom ordered the Concepción Health Service, the Ministry of Health and Fonasa to fund the treatment.
Diario Concepción clarified that Danie La Diaz, mother of the baby declared that "with joy, joy and blessing, we receive the news, because the determination of the Supreme Court is a great step for my son. "
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The child's mother expects the treatment to start as soon as possible and as Biobiochile says, the Minsal has already started with the importation of the drug, so Spinraza is already available in Chile.
Cristóbal Farías is the second patient to whom the courts have appealed for protection
Previously, the Court of Appeal had forced Isapre Nueva MasVida to include Lucas Pacheco in the catastrophic health plan.
* Spinal muscular atrophy is a group of inherited muscle diseases that cause degeneration and weakness. progressive usc
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