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Caracas, Venezuela AFP
At least 43 people have died in Venezuela since 2016 due to lack of treatment for hemophilia a disease whose mortality has been significantly reduced in most regions of the world. This Friday two NGOs
Half of the deaths were children who could not access the drugs needed to control the disease Detailed Antonia Luque, President of Venezuelan Association of Haemophilia ( AVH)) at a press conference
"It is necessary that the state accepts the opening of a humanitarian channel" for the entry of coagulants blood and other necessary drugs, said the activist.
in Venezuela about 5,000 people suffer from hemophilia and other haemorrhagic disorders of of which 212 are in "critical situation" he added.
According to Luque, about 60 of these people were forced to leave the country to receive treatment including Colombia, Peru, Ecuador and Argentina.
The Pharmaceutical Federation estimated 85% of the drug shortage in Venezuela a problem that equates to practically all drugs for chronic diseases, in the midst of one of the worst economic crises to which the oil country has been confronted.
"Not only are we lacking medicines to treat chronic diseases, but we are fighting against the deterioration of hospital centers the shortage of supplies and the diaspora of specialized staff" with the migration of doctors, Luque added .
In the same press conference, César Garrido, representative in the country of the World Federation of Hemophilia compared the situation of this disease in Venezuela with that of the rest of the world.
"We have received positive news from all over the world with the exception of Venezuela, I do not know of any country where patients are dying for lack of treatment," he said: "Today , hemophilia is extremely easy to treat, the costs are less than ten years ago, perhaps as much as 60% less " added Garrido, who noted that over the past two decades the life expectancy of patients has risen to 75 years.
Serious cases at the Inter-American Court of Human Rights (IACHR)
In the city from San Felix (Bolivar State, South), a young man received a first positive decision with the granting of precautionary measures, said Luque 19659015]
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