The launch of IBD standards today aims to radically improve the care of those who suffer

IBD UK, a partnership of 17 professional patient organizations chaired by Crohn's & Colitis UK, is campaigning to provide a revolutionary opportunity to promote better IBD standards.

People with IBD should receive safe, consistent, high quality and personalized care wherever they live and regardless of age, from diagnosis to treatment, to ongoing monitoring, but unfortunately, this is not the case now. The launch of the IBD standards today aims to significantly improve the care of people with IBD in the UK.

Announced today at the annual conference of the British Society of Gastroenterology, these 59 statements outline the quality care and treatment provided to patients with these conditions, with the aim of ensuring that all IBD services in the United Kingdom strive to satisfied.

S & P based on the previous standards of the PCI

This work builds on previous IBD standards, created in 2009 and updated in 2013, which underlie the 2015 NICE Quality Standard for IBDs and were an integral part of the IBD Quality Improvement Program. IBD quality in the UK, supported by the Royal College of Physicians until 2015. While significant improvements have been made, there is still much to be done to reduce variations.

Few services are able to offer psychological support to their patients, there are not enough nurses specialized in IBD and half of the patients wait more than a year to get their diagnosis. Plus, the way people with IBD are taken care of has changed over the years, with new treatment options and a shift to self-management, personalized care and support.

The standards of IBD 2019 were supported by the active participation of health professionals representing organizations such as the British Society of Gastroenterology, the Royal College of Nursing and the Royal College of General Practitioners, as well as 150 other people who participated in an online survey. At the same time, nearly 700 patients were interviewed through Crohn & Colitis UK, CICRA and AI about what is important to them in terms of the care they receive.

Rukshana Kapasi, President of IBD UK, says: "This is an exciting and groundbreaking opportunity for services and patients to work collaboratively, leading to improved lives for people with Crohn's and colitis ".

Discover the IBD benchmarking tool

In addition to the launch of the new IBD standards, this year, for the first time, IBD services will be compared, which will measure the extent to which their services comply with all statements. As of today, EIA services can subscribe to the EIA benchmarking tool and, as of 1 October, they will be able to complete the self-badessment by gathering evidence and answering questions. in a multidisciplinary team and with patients.

The reports released in the first quarter of 2020 will present these results, providing an opportunity to make a difference, support business cases, and highlight what services work well and where they can be improved.

In addition to this tool, IBD UK, supported by Crohn's & Colitis UK, will launch the first UK IBD patient survey on 8 July to allow people with Crohn's and Colitis to make an anonymous return to their patients. services and their care. IBD standards provide an opportunity to make real changes in the way care is provided to patients with Crohn's disease and colitis, creating a significant impact and influencing decision-making.

Kapasi concludes: "This version of the IBD standards provides us with the tools we need to improve the quality of the services provided and, by the same token, the care of people with IBD. These detailed guidelines included patient participation and were approved by the major professional organizations. "