2-year-old mother with dementia says "illness takes her daughter room by room"

A mother says that her two-year-old daughter, suffering from infantile dementia, is taken from her room by room.

Vicky Cunningham's daughter, Mirryn, is not able to sit or stand alone and has to go to bed all the time after "half of her brain has been eaten away by a chromosomal disorder."

Mirryn suffers from a very rare disease called "CLN1 Battures," which affects the nervous system and causes worsening vision, movement, and thinking problems.

She needs 24-hour care, is nurtured by a pimple in the stomach and could die from the slightest infection, reports the Daily Record.

Vicky, 34, told the Sun: "Like an elderly person with dementia, she will stop breathing at the end.

"You think it's an elderly person's illness and that's usually the case, but unfortunately not in this case.

"It takes my little girl, room by room."

Mirryn, born at 31 weeks and 2 days, was developing normally until the age of 10 months.

Her mother realized that something was wrong when her daughter stopped being able to keep things properly and took her to see medical checkups.

Mirryn was sent to the hospital and, after MRIs, in January of this year, he was diagnosed with CLN1 Batten Disease, often called infantile dementia.

Vicky of West Lothian, Scotland, said: "This disease has gnawed half of Mirren's brain.

"His brain is almost half his size.

"Because of this rapid deterioration, we do not know how much time we have with it, so for us, we are enjoying every moment."

Vicky said that her daughter loses sight and that she can not swallow or interact.

She told The Sun that her daughter could die any day, saying that she did not think she would get out before Christmas.

Vicky wanted to make the most of the time she spent with the two year old girl by bringing her to Disneyland Paris.

But as Mirryn is now too sick to steal, Vicky's single mom is hosting a Disney party with costume characters later in the summer.

To make the most of the festivities, their loved ones called "Go Fund Me" to raise funds for a special P Pod seat to protect his posture and allow him to breathe easily.

Written in Mirryn's voice, the fundraising page says: "I'm calling Mirryn and I'm suffering from a very rare illness called CLN1 Battens. Very few of us are suffering from this illness.

"Because of that, I can not sit or be alone and have to go to bed all the time.

"When I spend time at Rachel House, I have a fantastic seat called P Pod that I love and that protects my posture while I lie down.

"This seat costs a lot of money and I would very much like to be able to help you and my team to raise the funds needed to purchase this fantastic seat."

Batten's disease is caused by the accumulation of fatty substances, called lipopigments, in the tissues of the body.

This buildup kills the cells called neutrons in the brain, retina and central nervous system.

In the United Kingdom, only one out of two children is diagnosed with Batten's childhood disease.

Babies born with this disease often develop normally during the first months of life, but by the end of the first year, developmental progress begins to slow down, and babies may have difficulty sleeping through the night. become restless during the day.

The first signs and symptoms of the disorder include the onset of vision problems, jerks or convulsions, as well as subtle changes in personality and behavior, such as slow learning or regression, repetitive speeches , clumsiness or stumbling.