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A year ago, Megan Bugle was a healthy mom of two boys. Then one Sunday, while she was at home with her family, she collapsed on the kitchen floor, screaming in pain.
That's his brave story.
"Josh and I did the housework while our four-year-old taught our one-year-old child the best way to play with Play-Doh at our kitchen counter.
It was such an ordinary moment that I felt a horrible sensation tearing the nerves of my left arm. I said to Josh: "My whole arm has become numb."
He asked me if I was fine and I could only answer "no" between sobs and cries.
I had the impression that my skin was trying to exploit golf balls that were wildly moving in my veins.
The pain was everywhere. My neck, my head, my ear, my ribs and my arm. Everything on the left.
Just when I thought it would never stop, it stopped. Just as suddenly as it started.
In an instant, I could hear again. My children were crying; they were scared. My husband was on the phone with 911.
I had fallen to my knees on the kitchen rug, looking at my left hand.
As mysteriously as he came, the pain stopped. Photo: Megan Bugle
By the time the ambulance arrived, I was already rebaduring my scared boys that Mom was fine: "My arm is hurting me and I need a doctor to look at it."
But, as soon as I entered the ambulance, I became the child. And the trained medical team did their best to explain what was happening and to keep me calm.
"It could be a stroke, but it's more than likely it's just a pinched nerve," said EMT.
It was easy to believe it. I had never been a "sick" person.
Of course, I had colds, but I have never been to the hospital except to give birth to our babies. I've never even had a cavity! By the time we arrived at the hospital, I felt incredibly stupid to be brought on a stretcher with my purse on my lap.
In a few minutes I was questioned, stung and pushed.
Josh was introduced earlier than I thought, after taking our boys to our neighbor's, and was sitting with me while we were talking to a neurologist via videoconference.
When I was asked to explain the incident, I immediately felt the same horrible sensation tearing the left side of my body. I have frozen.
"It's happening again," I shouted.
This time, without the presence of my children, cries and tears flowed, and my arm moved wildly. I could not control it.
The hospital staff began to struggle and drugs were injected into my veins intravenously.
The tests revealed 23 tumors in the brain and spine. Photo: Megan Bugle
Again, the episode stopped as suddenly as it had started, but this time the hospital staff had seen it and they had suspicions about it was happening.
During the hours that followed, I was subjected to tests and the answers began to arrive. First, the seizure activity has been confirmed. Then we were told about brain tumors.
Finally, for the first time, we heard the word: Neurofibromatosis II.
I had 23 growing tumors in my neurological system; 17 in my brain, 1 in the left ear and 6 others in the spinal cord.
The coming months will test me more than anything in my 30 years of life so far.
I had more than 30 recorded focal seizures, 15 MRIs, 7 scans, 4 hospitalizations and 37 office visits.
On July 20, I had my first craniotomy. On October 12, I had another one.
I've learned that survival is more than the heart beating in the chest, breathing in the lungs and the functioning of the brain.
It means choosing to see beauty through ugliness and finding hope on bad days. It showed my boys what strength and endurance were like.
Who knew that the diagnosis of an incurable disease could actually be a cure?
That's my story, and it's not over. But through all this, I will continue to be grateful for what I have and see the bright side of things. That's what life is all about. "
This article was originally published on Kidspot and has been reproduced here with permission.
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