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As a technology correspondent for the BBC, Rory Cellan-Jones often appears on the air in front of millions of viewers. So when people began to notice that his hand was shaking during the broadcasts, he decided to make public the reason for this shake: he was diagnosed with Parkinson's disease.
In a tweet posted Thursday, Cellan-Jones admitted that recent tremors had been observed. He therefore learned that he had recently been diagnosed with Parkinson's disease, that he had mild symptoms and that he was undergoing treatment.
"I continue as usual. From now on! He wrote.
A few people noticed that my hand was shaking in my live 5G broadcast today. So it's a good time to reveal that I recently had a diagnosis of Parkinson's. I am getting good treatment and the symptoms are mild at this time. I am therefore pursuing normally. Forward and up!
– Rory Cellan-Jones (@ ruskin147) May 30, 2019
Cellan-Jones appeared on BBC Radio 5 Live on Friday to learn more about his diagnosis. He said he was diagnosed a few months ago, which was not a shock because he had "noticed a few changes" over the last year.
He said his producer had put forward the idea of sharing his diagnosis publicly because she and others had already noticed the tremor.
"So, I just said it, I really wanted to be honest because some people were worried," Cellan-Jones said. "A few people had contacted the BBC and suggested that I should see a doctor, I had already done so and I wanted to be honest about it."
Parkinson's disease is a neurodegenerative disease caused by the loss of neurons in the part of the brain called the substantia nigra, which normally produces dopamine, a neurotransmitter that signals to other cells involved in motor control, emotions and targeted behavior. The absence of dopamine causes symptoms such as tremors, slow movement, stiffness, gait and balance problems, depression, loss of smell, fatigue, etc. .
Parkinson's disease is more common in people over 50 and worsens over time, although it is not considered a terminal illness. Medications, exercise, physical therapy and a surgical procedure called deep brain stimulation can help manage the symptoms.
Cellan-Jones said that since he had diagnosed himself, he had received many kind messages, including some from others with Parkinson's disease. He encouraged people to talk openly about their diagnosis.
"I was with an excellent Parkinson's nurse the other day and she spoke to me about one of her clients whose diagnosis had been diagnosed at a very young age and who had lost her job because He had begun to slow down a bit and that he had not warned his employers about it, he said. "You need this information there."
If you're living with Parkinson's, you may feel that people around you do not understand what you're going through – but there is a community of people with Parkinson's that can understand you. You are not alone.
First, respond to our survey to share your experiences with Parkinson's disease. Then check out these stories written by other members of the Parkinson community:
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