Ja bari Gray, baby born skinless under the neck, green illuminated by an insurance provider to get a hospital treatment 'Out Of Network & # 39;

A 3-year-old San Antonio baby, born of a missing skin in some parts of the body, is now in Houston to receive a life-saving treatment.

Jaar Gray, born on New Year's Day and weighing barely 3 pounds, has an extremely rare form of skin disease called Aplasia Cutis. He was born without a neck skin.

What is Aplasia Cutis?

The disease is characterized by a conbad absence of skin. The most commonly affected parts are the scalp, but any area of ​​the body can be touched.

"He literally took off his neck, from the front and from the back, he had no skin and even parts of his legs, he had no skin", said the baby's mother, Priscilla Maldonado.

The causes of Aplasia Cutis are unclear, but health experts believe that many factors, such as genes, trauma and poor blood circulation, contribute to the disease.

Some sufferers have no other abnormalities, but there are others that also have conbad malformations that affect the cardiovascular, gastrointestinal and intestinal systems of the body.

Jaar bari has complications. His eyes were welded and, as his skin began to develop on his own, his fingers, toes and neck became welded while he was in intensive care. He also has difficulty breathing because of the folded airways.

Bad prognosis

Maldonado said the doctors had told him that there were only two other babies born in the United States, like Jaar, and that none of them were born. Had survived.

After spending the first three months of her stay at the San Antonio NICU, the doctors had advised the family to prepare for the worst, but they had refused to give up.

The insurance approves the transfer

Making things more difficult is first denied their transfer to another hospital, where the child could receive better medical treatment.

The insurance company told Maldonado that she was off-line, so the baby's transfer and stay would not be covered.

The persistence of Maldonado, however, worked. One day after Medicaid refused the medical transfer, the insurance provider decided to approve it.

Maldonado said that he had been told that doctors could treat the condition of his son.

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