Parents taking care of sick children warned of sharing stories on social networks following the Charlie Gard and Alfie Evans cases



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rePeter-Marc Fortune, co-author of the orientation and president of the Pediatric Intensive Care Society, said: "Expectations for expected healing have changed significantly, which has been quite palpable over the past decade.

"I think this has allowed difficult conversations and challenges to happen along the way."

Professor Dominic Wilkinson from Oxford University said, "I think it's very difficult for a family to accept it nowadays, with everything you read in the news about newer therapies. to our science that in reality there may be nothing more that medicine can do to help. "

The document "is a recognition by professionals that there is a problem," said Professor Wilkinson.

"There have been these cases of intense disagreement and they will not go away, there will be another case like Charlie Gard or Alfie Evans," he added.

"These cases have been so painful for everyone involved."

The new guidelines were published in the journal Archives of Disease in Childhood.

Four British hospitals are currently experimenting with a conflict management framework that aims to reduce the number of disagreements between hospital staff and families.

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