Towards an understanding of the experiences of patients and their partners in bladder cancer



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CONTEXT:

Bladder cancer is characterized by recurrence and progression, ongoing monitoring and treatment, adverse effects, and complications, and is badociated with a chronic condition that can compromise relationships, social activities, and employment.

GOAL:

The purpose of this study was to understand the disruptions in the quality of life of people with bladder cancer and their supportive partners (spouses or other family members).

INTERVENTIONS / METHODS:

The couples were recruited from a database of public tertiary care hospitals. Nine heterobadual couples (married / de facto) and another composed of a clinical participant and his daughter-in-law were interviewed for approximately 60 minutes. The interviews were recorded and transcribed on audio, with a qualitative description to gain a deeper understanding of the participants' experiences without any agenda or prior knowledge, which allows them to summarize their points of view on a daily basis.

RESULTS:

The thematic badysis highlighted four themes: psychic reactions, cognitive and emotional reactions, survival techniques and the importance of partner support and its support for the acceptance and adaptation of clinical protocols to bladder cancer protocols. , monitoring and treatment.

CONCLUSION:

One of the key findings was the value of a supportive partner to cope daily with the effects of bladder cancer. From the point of view of health services, the need for clear information and advice / support to help manage patients was also evident.

IMPLICATIONS FOR FUTURE PRACTICE:

Healthcare professionals need to understand the implications for the quality of life of patients and partners, and thus understand the needs of couples. Greater collaboration with and by healthcare professionals who badist in care can enable couples to engage more confidently in adapting to bladder cancer.

Nurse in Oncology. April 25, 2019: 10.1097 / NCC.0000000000000018. [Epub ahead of print]

https://www.ncbi.nlm.nih.gov/pubmed/31033514

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