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A father with two children considered the youngest person with Alzheimer's disease in the UK said his grief to learn that his two-year-old twins could have the same cruel illness.
Daniel Bradbury, who is only 32 years old, was diagnosed with an aggressive form of the disease in September 2017.
In addition to struggling to remember things, he has trouble concentrating on anything and can not find his twins Jasper and Lola because his physical strength is fading.
He told Mail Online: "It's frustrating to see the bankruptcy of my body and to know that I will not see my children growing up, and I feel like a burden."
Daniel, who lives in Hucknall, Notts, inherited the disease from his father Adrian, who died at the age of 36.
This means that there is a 50% chance that Jasper and Lola will also be affected.
Jordan, Daniel's wife, said: "It's the longest and most cruel farewell." I watch the love of my life disappear literally before my eyes.
"And it's a double whammy, because not only do I lose my soul mate and my best friend, but it may have pbaded on the gene to our kids, so I should maybe repeat the same." experience when they are older and start showing symptoms. "
Daniel began to suffer from depression, then his memory and coordination deteriorated and he began to suffer from headaches.
Soon he lost his engineering job because he was "underperforming".
The couple discovered that he could have inherited a form of aggressive dementia when Jordan was three months pregnant with twins Jasper and Lola, now two years old.
Their worst nightmare was confirmed when they received Daniel's blood test results.
The disease is caused by a genetic mutation called PSEN1, which has been diagnosed in fewer than 600 people worldwide.
At the time, doctors suspected Adrian had vCJD, the human version of mad cow disease.
Facts about dementia
● Vascular dementia is the second most common type of dementia (after Alzheimer's disease) and affects approximately 150,000 people in the UK.
● Symptoms may include memory loss and difficulty thinking, problem solving, or talking with difficulty.
● In the United Kingdom, 5.2% of people under age 65 have dementia, which represents more than 42,000.
● Some people have both vascular dementia and Alzheimer's disease – this is called mixed dementia.
● Dementia affects about 10% of people over 65 and 20% of those over 80 have severe dementia.
They only found out that he had dementia 25 years after Adrian's death, after badyzing a sample of his blood and brain, kept in an Edinburgh lab, after Daniel had begun to manifest the same symptoms.
Jordan and Daniel were married last year after planning their wedding in just a few months, so that Daniel could remember it as much as possible.
Addressing the Mirror at the time, Jordan said, "I was afraid that Dan would be really emotional and forget what he wanted to say in his wishes, but he spoke with his heart. He was so clear and calm that he did not hesitate once.
"He told me to remember what he felt for me and that he would feel it forever, even when the disease became infected and he could not show me. It was wonderful to hear those words.
"It was I who was very moved towards the end of my vows.
"I tried to hold my breath so I did not cry, but I finally sobbed the last words, I could not stop myself, luckily Dan understood me.
"The next day we sat down and went through all the photographs. If his memory begins to fade, we will have all these pictures and the video to show him how perfect our day has been and how happy we are. "
They even had a special guest, actress Vicky McClure of Nottingham, best known for her award-winning role in BAFTA in This Is England and for her Line of Duty cops show.
Daniel and the actress became friends while raising public awareness of the Alzheimer Society.
They also worked together on a new BBC documentary, My Dementia Choir, while Vicky's grandmother died of dementia. And they will complete the charity's Annual Memory Walk next month.
Daniel says, "Everything happened so fast, it was like a twilight zone, but it was the perfect day."
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Main reports of Mirror Online
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