A 10-year-old schoolgirl suffering from a devastating lung disease dies at the hospital

A 10-year-old girl who bravely fought a lung disease all her life died in the hospital waiting for a double transplant.

Belle Curran, from Wolfscastle in Pembrokeshire, who loved pink, played with friends and watched her favorite TV show, Masterchef, died peacefully on Friday.

The schoolgirl had been hospitalized since her diagnosis of debilitating illness at the age of two years.

But while waiting for a vital transplant at Great Ormond Street Hospital, Belle has unfortunately "lost her fight" against the disease.

The heartbreaking announcement of her death, made by her family, said: "Our brave Belle unfortunately lost her fight and died peacefully on April 5th. Thank you all for your love, your kindness and your support. & # 39;

Shortly before her death, Belle, whose mother had nicknamed her "eighteen years old", had decided that she did not need the 30,000 supporters gathered for her and asked that everything be returned to charity on her behalf.

Her mother said that Belle was a girl so determined, funny and knowledgeable, and nothing would bother her once she thought about it. She never complains about her health and is extremely positive. "

The family of the decent 10-year-old boy now wants to emphasize the need for organ donors after Belle contracted interstitial lung disease diagnosed at the age of two.

This meant that her lungs were stiff and hard and not spongy, which meant that Belle had to breathe about three times faster than other kids and she was running out of energy quickly and had to struggle to keep her weight down.

Little Belle needed a wheelchair to move around and depended on a face mask to provide oxygen to keep her alive.

She needed a double lung transplant to survive and her mother described how she woke up each day in the hope that a donor became available.

But Belle was also sad to note that if a donor received new lungs, it would mean that another family, somewhere, would have lost a child.

Last month, Curran said, "If Belle has new lungs, another family will have gone through a terrible time.

"I just hope someone, somewhere, might think they can do the greatest good and give Belle's life a gift."

"I hope someone will know that with the donation of organs, something as terrible as the death of a child can be beneficial."

Belle was on an emergency waiting list for a lung transplant at Great Ormond Street Hospital.

"Unfortunately, Belle's lung cavity is so small that she can only get the lungs of a child," said Ms. Curran.

"There is no chance that an adult's lungs fit into the small space."

Over the past year, her condition deteriorated and she was "worse off than she was doing well," her mother had already said.

She hoped that by talking about life with the disease, more people would understand the value of organ donation.

Because of her condition, Belle was likely to contract the infection and had not gone to school between October and April. She was schooled at home.

Her mother predicted that she is working less time by returning to school this spring.

"She will come in at 11 am and stay until the end of the school day," said Ms. Curran.

& # 39; We'll see how she has her energy. She is a determined little girl and speaks very clearly of her choices. Belle does not like to be treated differently from her friends, she just wants to progress and learn.

Every Friday, Belle went to the local guides where she was treated like any other child.

"She and her friends are like a small team," said Ms. Curran.

"They understand all her difficulties, check her oxygen level and keep the doors open for her. They make neither noise nor judgment, and as a mother, I am very grateful for that.

After a presentation to the clbad on donating organs, a little boy approached Belle and told him that he was dying before Belle, he would tell his mother to give him his lungs .

On the occasion of Mother's Day, Stella published a beautiful but heartbreaking article on the Belle & # 39; s Story Facebook page, published on the University of Wales Hospital, where she was at his side.

The page has been set up to raise awareness about organ donation.

She wrote: "Happy Mother's Day to all your wonderful mummies.

"It's a little different for us this year – but sitting in UHW, holding Belle's hand, watching the screens, wishing the numbers to be right, stroking her hair, holding her when she's anxious, taking her sips of water, his feet, listening to Bake Off constantly repeat, holding my breath when the doctors arrive.

& # 39; Phone calls at 2 am, needing his mother, chills when the test scores reach us, change bed, mop up his little body and pick up Bob near his cheek are a privilege and I do not would be nowhere else to wait. and praying that she will go better.

"She always shows her determination and her fight and slowly shows an improvement.

& # 39; She sleeps a lot of time, rests her little body, lets her heal herself, she fights two infections with the help of antibiotics and many other medications, as well as a great team consultants, doctors and nurses. i've had my mother's day gift, she's here, her hand in mine, i'm just the luckiest and eternally grateful mom. & # 39;

Belle was well known in Pembrokeshire with various fundraisers organized for her.

Until now, Belles Story, with the help of Haverfordwest Ladies Circle, has raised more than £ 30,000 for five different organizations.

Ms Curran said: "Giving someone else the chance of a new life is the best thing to do. Everyone and their families should be on this list and talk to each other.

"Do not wait for the moment to hit, make the decision now."