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Doctors did not think Jude Peters would be two weeks old.
This year, he celebrated his fifth birthday.
During her pregnancy, Hannah Peters, Jude's mother, learned that her son would have a form of skeletal dysplasia.
Two days after his birth, Jude was diagnosed with rhizomelic chondrodysplasia (RCDP), a rare disorder of brain development and a form of dwarfism.
Hannah and her husband, Sully, were asked to prepare for the worst. Jude could not live longer than a few weeks.
He underwent several surgeries and had to be fed by a tube.
But in one way or another, he continues to survive. He is now five years old.
Hannah said, "When they diagnosed him, they told us that we would only have a few weeks with him.
"He defied the odds and continued to be a fighter.Our miracle boy turned five on April 17th.
Jude was born with conbad cataracts in both eyes and was operated at six and eight weeks to remove them. He is fully fed through his feeding tube which was surgically placed during the first month of his life.
"He has spinal stenosis, kyphosis and attached cord. His joints are contracted, which requires him to need a lot of therapy. He has a weekly home therapy and he loves it; this puts him at ease.
"Jude relies on wheelchairs, but whatever medical problems he has faced and still has to face, Jude is filled with tremendous joy. He loves to meet new people and smiles every day. "
What is the RCDP?
Rhizomelic chondrodysplasia (RCDP) is a form of dwarfism and a rare terminal metabolic genetic disease.
The main features of the RCDP include skeletal abnormalities, distinctive facial features, intellectual disabilities, and respiratory problems.
Statistics show that 60% of children with PDRC do not go to their first birthday and 30% do not live up to their second birthday.
CPDN is a form of dwarfism and, although achondroplasia is the leading cause of skeletal abnormalities, this form affects children's neurological system, respiratory system and digestive system, as well as their deformities.
Despite the difficulties he faces, Jude is a happy child, always smiling and adoring to meet new people.
His parents found support from an organization called RhizoKids. They also share the story of Jude online on Facebook and Instagram.
"Rhizomelic punctate chondrodystia is a disease that impedes the normal development of many parts of the body," says Hannah.
"We were devastated when Jude was diagnosed with CPR by the age of two days. However, we stand in solidarity with hope and faith and Jude has come a long way.
"We share Jude's story from the very beginning; I started blogging when Jude was diagnosed in utero with skeletal dysplasia.
"Awareness is very important for children with rare diseases and we are working hard to educate Jude and his siblings Rhizo.
"The most difficult part of it was hearing about the life of the children of the CHRP and knowing that Jude could never walk, talk or eat.
"Such a handicap is heartbreaking for any parent; The last five years have had some ups and downs.
"Overall, we have joy. Jude has learned to communicate and show love in his own way.
Jude is a very beloved little boy; We have been overwhelmed by the love, prayers and support of our friends, family, local press, community and online subscribers, whom we call Jude's Tribe.
"We often hear that Jude's story inspired people, gave them joy and gave them hope in their own situation. We feel blessed that Jude's story has had such a positive impact. Our hope to share our story is that everyone can have the joy of living like Jude. "
Jude's parents will do everything in their power to keep their child happy, despite all of his health problems.
His condition means that he easily catches viruses, while affecting his neurological system, his respiratory system and his digestive system, as well as their skeletal malformations.
"We hope Jude will continue to lead a happy life," said Hannah. "We are working hard to protect it.
"Many have called Jude a brave little warrior from the very beginning.
More: Health
"We call our local community of supporters and followers of social media, Jude's Tribe and its tribe, the best tribe.
& # 39; There is always hope. Live one day at a time. Never take anything for granted. Always find joy in everything.
"What Jude prefers is to dance. Always take the time to live in the moment and take the time to dance. Never give up. & # 39;
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