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One couple revealed how they made the painful decision to abort their first child – after the doctors had told her that she had a serious birth defect that could lead to a life of suffering.
Jade, 32, and Mark, 31, from Wakefield, West Yorkshire, were delighted to become pregnant after two and a half years of trials and several fertility treatment cycles.
However, the couple's dreams of finally having a baby were broken after a 20-week routine badysis that revealed that the girl they called Amalie May had spina bifida, a serious conbad abnormality.
After consulting a doctor, the couple decided to terminate the pregnancy at 22 weeks, just two weeks before the legal abortion limit in the UK.
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"Totally for her": Jade Dodson, 32, and her husband Mark, 31, from Wakefield, were thrilled to get pregnant after two and a half years of conception, including fertility treatment. However, a 20-week pregnancy test revealed that their daughter, Amalie May, had a serious conbad anomaly that would mean her life would be "difficult."
After 20 weeks of routine pregnancy badysis, Joy turned to anxiety after Jade and Mark had learned that it was likely that their daughter would have brain damage that could lead to paralysis.
The couple claims to have made the heartbreaking decision to cancel the pregnancy after doctors told her that even an operation in the womb might not improve their daughter's condition
After a procedure to stop Amalie's heartbeat in the womb, she was born on December 22, 2018 and a funeral took place on January 4, after Jade cured an infection that He had been admitted to hospital on New Year's Day.
The couple, married in October 2015, had learned that the state of health of Amalie meant that it was likely that she would have suffered brain damage and possible bowel dysfunction and paralysis.
An option to operate the baby in the uterus was offered to the couple but there was no guarantee that their daughter would avoid a life of suffering or that Jade herself would not be endangered.
We had a procedure under local anesthesia to stop Amalie's heartbeat at 22 weeks old. Our decision was made entirely for her …
Spina bifida is a neural tube defect that affects about one in 1,000 babies in the UK and the daughter of Jade and Mark had the most severe form of the disease, called myelomeningocele.
Now, they say that they made the heartbreaking decision to end their duties because they wanted to "free" Amalie.
Jade told Mirror Online: "Before the 20-week badysis, everything was perfect, we felt the luckiest people in the world and we had already known that she was going to become a girl."
What is spina bifida?
Spina bifida is a flaw in the development of the spine and spinal cord that leaves a void in the spine.
According to the CDC, about 1,500 babies are born each year with spina bifida in the United States. In the United Kingdom, about 1 in every 1,000 babies is born with this disease.
Most cases are detected before birth, at the 20-week badysis.
The most serious form of the disease is called myelomeningocele. In the myelomeningocele, the spine remains open along the bones constituting the spine.
The membranes and spinal cord are pushed back to create a bag in the back of the baby.
This sometimes leaves the nervous system vulnerable to potentially fatal infections.
In most cases, surgery is performed to fill the gap in the spine after birth.
But damage to the nervous system will usually have already occurred, resulting in:
- partial or complete paralysis of the lower limbs
- intestinal and urinary incontinence
- loss of skin sensation
Most babies with myelomeningocele will also develop hydrocephalus, with excess cerebrospinal fluid (CSF) accumulating in the brain.
This is caused by a malformation at the base of the skull in which the lower parts of the brain are pushed to the spinal cord.
Babies with hydrocephalus are equipped with a shunt after birth to divert fluid from the brain, thereby reducing the risk of increased cranial pressure in the abdominal cavity.
Jade and Mark photographed the day of their wedding, in October 2015. After years of childbirth attempts, they discovered that they were waiting for Amalie in August of this year.
Challenge: The couple will now complete the challenge of the three summits on the day that Amalie is born to honor her and raise funds for Action Medical Research, which funds research on diseases including spina bifida.
A second appointment after the badysis of fetal development has confirmed their fears about Amalie's health.
Jade told Mirror Online that she had been informed that she could have an abortion. "We were told that I would have a procedure under local anesthesia to stop Amalie's heartbeat before giving birth, and that's what we decided to do at 22 weeks.
"We felt it was the best thing for Amalie ethically. Our decision was made entirely for her.
After the abortion on December 22, 2018, a funeral took place on January 4, while Jade was cured of an infection.
On a fundraising page created in memory of Amalie for the purpose of raising funds to continue his research on spina bifida, the couple revealed the heartache suffered since the loss of his pregnancy .
Jade said, "This has been by far the hardest thing we have ever faced. We would like to help prevent the future suffering of couples, families and their babies. & # 39;
The couple will now finish the Three Peaks Challenge on the day of Amalie's birth on April 27th.
They added, "Many of our family members and friends will join us on this day to take up the challenge and help us achieve the ambitious goal of £ 5,000 we are aiming for.
"Together, we can learn more and more our story continues, so feel free to share this page with your family and friends."
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