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WARNING: graphic
For years, Jorgia Robson looked in the mirror and wished that the tiny acne spots on her cheeks disappear.
But when the 20-year-old mother woke up one day and saw that a giant "button" the size of a 50-cent coin appeared on her forehead during the night she immediately feared that something more was going to happen – she did not know what it was.
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"It looked like a blind button, but I immediately understood that it was not one," said Jorgia. Kidspot.
SO MUCH OF PAIN
In the ensuing week, busy mom – who juggles raising her two year old son, Hunter, as well as working and studying – suffered painful migraines all day long.
"They did not want to stop, I had trouble breathing, and my chest and arms started to hurt me all of a sudden."
When the pain of the lump became too difficult to bear, Jorgia went to the clinic of his general practitioner in Nepean, his hometown, New South Wales, where two doctors examined him and diagnosed the hunk as an infected "blind button".
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Jorgia was sent home with antibiotics and received a second dose of medication when she returned two weeks later, with even greater pain and a lump that had turned into a "sausage" shape.
When this treatment failed, her doctor ordered an ultrasound. It is then that the world of Jorgia has collapsed.
"I had the scan and they immediately knew that it was abnormal cells," recalls Jorgia.
X-rays revealed the terrifying truth. Image: provided
THE ANSWER SHE FEARS
On the same day, he was diagnosed with Langerhans cell histiocytosis (LCH), a rare cancer in the adult where the immune system is so compromised that the skull bone is eaten away.
Doctors at the Royal Prince Alfred Hospital in Sydney told Jorgia that they had seen only one case reported in an adult before in New South Wales.
The condition is more common in young children.
The following days were a frightening blur of PET and computed tomography and four bone biopsies showing that the disease had caused a three to four centimeter hole in the skull.
Jorgia and Hunter.
Since then, she has undergone a craniotomy and a cranioplasty, during which surgeons cut off part of her skull and covered part of it with plaster.
Instead of the "button" that she had before, Jorgia now has a cut on her forehead where part of her skull was and a scar from 23 staples of surgery.
Jorgia feels even more helpless about her inability to work and care for little Hunter and needs the support of her family, who recently set up a gofundme campaign on her behalf.
"It was hard to be a mom, I was doing everything for him now, I can not."
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THE LONG BATTLE AT THE FRONT
While the lump on her skull only appeared a few months ago, the doctors told Jorgia that she was probably suffering from the disease for several years.
"I had migraines from time to time, that could have been the link," she explained.
"They told me that if it was not taken now, the hole in my skull would have entered my brain."
Now the brave mother is waiting for further exams to see if the cancer has spread to other parts of her body.
Even if she miraculously succeeds in "clearing everything," the nature of the disease means that the relief is probably temporary.
"It was said that it would surely come back, so I will have to undergo follow-up badyzes every year," she said.
Jorgia has a long way in front of her.
– Josephine Agostino is a journalist and freelancer who writes for Kidspot, Australia's leading parenting site
– This story was originally published on kidspot.com.au and is reproduced here with permission.
Jorgia post-operation.
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