"I only held it twice": advocacy of our American mother after a baby born without skin



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However, doctors at the new Ja Bari Hospital in Houston, where he was transferred last week, think that it could be Epidermolysis bullosa, a genetic disease that causes blisters. generalized and painful.

It may be weeks before doctors know what needs to be done.

Jaar bari must undergo surgery to make an incision in the throat and an incision in the scar tissue that caused the fusion of his chest and chin.

His parents hope to raise funds for his treatment because they do not know how long he will have to be hospitalized.

The GoFundMe created by Maldonado and his partner has reached $ 25,465 on his $ 50,000 goal.

The couple must take care of two other young children.

Newshub.

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