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Crohn's & amp; The Colite Foundation has created an infographic generator to support the activities of #myIBD Awareness Week.
Provided
For many non-profit organizations around the world, the willingness of people to talk about their experiences with the organization represents the eternal dilemma of social media.
With a little ingenuity, the Crohn & & nbsp; & amp; Colite Foundation found an effective way to tackle this thorny issue head-on.
Although approximately 3.1 million Americans are affected by Crohn's disease or ulcerative colitis, the stigma surrounding IBD often stifles the conversations needed, especially on social media.
That's exactly why the foundation built the #myIBD Generator. Via a form funded through partner support& nbsp; Arena Pharmaceuticals, Inc., Celgene Corporation, Eli Lilly and Company, Janssen Biotech, Inc., Pfizer, Inc., Takeda Pharmaceuticals, United States of America, Inc., and UCB, Inc., Crohn & # 39; s & nbsp; & amp; Colitis Foundation & nbsp; invites patients and caregivers to complete an eight-question survey of their experiences with IBD.
According to Rebecca Kaplan, Head of Public Affairs and Social Media at & nbsp; & Cro; from Crohn Colite Foundation, more than 6,600 infographics have been created since the generator was launched as part of Outreach Week activities in 2017.
"Explaining what Crohn's disease or ulcerative colitis can be difficult," Kaplan said. "In addition to the physical symptoms, which can be taboo, there are many things that we do not see.We wanted to offer patients and carers a simple and modifiable way to show what living with an illness is like Chronic and debilitating inflammatory bowel is what the infographics generator does: it offers people a simple way to display a snapshot of their illness journey, share it on social networks and make these diseases invisible more visible. "
"(The Computer Graphics Generator) & nbsp; offers people a simple way to present a snapshot of their illness journey, share it on social networks and help make these invisible diseases more visible. " – Rebecca Kapaan, Head of Public Affairs and Social Media at Crohn's and Colitis Foundation
& nbsp; A search on the hashtag #myIBD on Twitter reveals a substantial number of anecdotes shared by patients and guardians.
IBD is one of those silent diseases, yet almost everyone I know has someone in their life who has been touched by it. This weekend marked 5 yrs since I was released from the hospital after life-saving surgery during the worst snowstorm in decadeshttps://t.co/C2W7Wa5iUo#myIBD pic.twitter.com/rW9ZrVhYme
— Joshua Bradley (@airjoshb) December 10, 2018
"This weekend marked the fifth anniversary of my leaving the hospital after a life-saving surgical procedure during the worst snowstorm in decades." Joshua Bradley (Twitter user) wrote@airjoshb), connecting to a blog article detailing his story of perseverance.
His #myIBD chart explains how his life feels "unbelievably small and insular" when his symptoms come out, but he receives support from him. "family and friends."
An Instagram search for #myIBD also shows a handful of chart iterations, among more than 5,800 publications in the global EIA support network.
Joining the hashtag community around & nbsp; #myIBD, Joshua tells the story of thousands of other people who also described in detail their own fight against IBD.
Crohn's & & amp; aggregate data #MyIBD survey of the Colitis Foundation.
Provided
The & nbsp; & amp; Crohn's Colitis Foundation has aggregated the data collected as part of the survey to share information about the findings, including the fact that the heaviest toll for patients is not necessarily physical, but emotional .
Kaplan also said the foundation was working on future iterations of the computer graphics generator, which will benefit more patients around the world.
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The Crohn & Colitis Foundation has created an infographic generator to support their activities of the #myIBD Awareness Week.
Provided
For many non-profit organizations around the world, the willingness of people to talk about their experiences with the organization represents the eternal dilemma of social media.
With a little ingenuity, the Crohn & Colitis Foundation has found an effective way to tackle this thorny issue head-on.
Although there are an estimated 3.1 million Americans with Crohn's disease or ulcerative colitis, the stigma surrounding IBD often stifles the necessary conversations, especially on social media .
That's exactly why the foundation built the #myIBD generator. Via a form funded through partner support Arena Pharmaceuticals, Inc., Celgene Corporation, Eli Lilly and Company, Janssen Biotech, Inc., Pfizer, Inc., Takeda Pharmaceuticals USA, Inc., and UCB, Inc., the Crohn's & Colitis Foundation, encourage patients and guards to a survey in eight questions about their experiences with ITNs.
According to Rebecca Kaplan, head of public relations and social media at Crohn's & Colitis Foundation, more than 6,600 infographics have been created since the foundation introduced the generator as part of its week-long awareness activities. 2017.
"Explaining what Crohn's disease or ulcerative colitis means can be difficult," said Kaplan. "In addition to the physical symptoms, which can be taboo, there are many things that the eye can not see.We wanted to provide patients and caregivers with an easy and shareable way to show how it feels like living That's what the infographic generator does: it gives people a simple way to post a snapshot of their journey, share it on social networks and make these invisible diseases more visible. "
"(The Computer Graphics Generator) offers people an easy way to show a snapshot of their illness journey, share it on social networks and help make these invisible diseases more visible." – Rebecca Kapaan, Head of Public Affairs and Social Media at Crohn's and Colitis Foundation
A search on the hashtag #myIBD on Twitter reveals a substantial number of anecdotes shared by patients and caregivers.
IBD is one of those silent diseases, yet almost everyone I know has someone in their life who has been touched by it. This weekend marked 5 yrs since I was released from the hospital after life-saving surgery during the worst snowstorm in decadeshttps://t.co/C2W7Wa5iUo#myIBD pic.twitter.com/rW9ZrVhYme
— Joshua Bradley (@airjoshb) December 10, 2018
"This weekend marks the fifth anniversary of my release from the hospital after an operation that saved my life during the worst snowstorm in decades," wrote Joshua Bradley, a Twitter user (@airjoshb), a link to a blog post detailing his story of perseverance.
His #myIBD graph explains how his life feels "unbelievably small and insular" when his symptoms are over, but he gets support from his "family and friends".
An Instagram search for #myIBD also shows a handful of chart iterations, among more than 5,800 publications in the global EIA support network.
Joining the hashtag community around #myIBD, Joshua tells the story of thousands of other people who have also detailed their own struggles against IBD.
Aggregate data from the #myIBD survey of the Crohn's & Colitis Foundation.
Provided
The Crohn's & Colitis Foundation has aggregated the data collected as part of the survey in order to share information about the findings, including that the largest number of victims for patients is not necessarily physical, but emotional.
Kaplan also said the foundation was working on future iterations of the computer graphics generator, which will benefit more patients around the world.
