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New national network aims to improve the health of children and youth with special needs
July 12, 2019 – A new research network for children and youth with special health care needs (CYSHCNet), led by researchers from the University of Colorado School of Medicine, at the University of Colorado. Children's Hospital of Colorado and Boston Children's Hospital, will lead, promote and coordinate national research activities to improve their care systems.
Funded by the US Department of Health and Human Services, the Health Services and Resource Administration (HRSA), the Office of Maternal and Child Health, the 11-site research network will lead, coordinate and promote health systems research for CYSHCN. The work of the network will strengthen the evidence base for the key elements of a comprehensive and high quality care system for CYSHCN. It will address a need for CYSHCN and their families to have evidence on how best to provide and coordinate care for their diseases.
The new network is led by Christopher Stille, MD, MPH, professor of pediatrics at the University of Colorado School of Medicine and Colorado Children's Hospital; Jay Berry, MD, MPH, badistant professor of pediatrics at Harvard Medical School and Boston Children's Hospital; and Charlene Shelton, RN, Ph.D., program officer at the University of Colorado Denver.
"We are very proud to lead the new network, it will be a" big tent "for children's health research across the United States, where researchers work, policy groups, as well as patient and patient groups. families can work together, "said Dr. Stille. . "We are starting with eleven major institutions and partners, and we will eventually include more, and the more diverse the network, the better the information provided to improve health care for children with special needs across the country."
CYSHCNet maintains relationships with Family Voices, the Association of Maternal and Child Health Programs (AMCHP), the American Academy of Pediatrics (APA), Medicaid State Programs and the Children's Hospital Association (CHA) as well as research networks working in other areas of child health. and adolescent health. These stakeholders and others collaborated on the development of a national research program for CYSHCN, which will be released later this year. In collaboration with the CHA, the network hosts teams working on secondary database projects related to important health system themes for the CYSHCN, including emergency and urgent care, the transition to health care, and health care. Adulthood, disability and income from social security, multimorbidity, neonatal care, post-acute care and chronic drug use.
The first of these secondary database projects, led by Dr. James Feinstein (University of Colorado) and Dr. Berry, devoted to opioid exposure in CYSHCN, was published in the Journal of Pediatrics. The results of the study will further educate parents and clinicians about opioid prescribing at CYSHCN and, if so, when and how follow-up should occur. The findings will also inform opioid prescribing guidelines and policies for the CYSHCN at the hospital and government levels, such as the Medicaid Pharmacy and Therapeutics Committees, to ensure the safety of the use of drugs. Opioids in CYSHCN. A second completed study on polypharmacy in CYSHCN was also recently published in the Journal of Pediatrics.
"The kernel of data and secondary badysis of the network is booming," said Dr. Berry. "Over time, the core will fuel a portfolio of compelling health systems research on CYSHCN."
Potential network projects underway include badessing factors that increase parents' confidence in caring for their children in times of stress; collaborative models between academic medical centers and community clinicians for children with medical complexity; and a peer mentoring program to help youth with special health care needs transition from pediatric health care to adult health care.
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For more information on CYSHCNet, visit the CYSHCNet website at http: // www.
About the Boston Children & # 39; s Hospital
The Boston Children's Hospital, the leading teaching affiliate of pediatrics at Harvard Medical School, is home to the world's largest research company based in a pediatric medical center. His discoveries have benefited children and adults since 1869. Today, more than 3,000 scientists, including nine members of the National Academy of Sciences, 17 members of the National Academy of Medicine and 11 Medical researchers Howard Hughes form the research community of Boston Children's. Founded as a 20-bed children's hospital, Boston Children's is now a full-service health center for children and teens of 415 beds. For more information, visit our Vector and Thriving blogs and follow us on social media @BostonChildrens, @BCH_Innovation, Facebook and YouTube.
About the Colorado Children's Hospital
The Colorado Children's Hospital is one of the largest and most extensive pediatric health care systems in the country. Its mission is to improve the health of children through patient care, education, research and advocacy. Founded in 1908 and recognized as one of the Top 10 Children's Hospitals by the US News & World Report, Children's Colorado has established itself as a pioneer in discovering ground-breaking and revolutionary treatments that shape the future of children. pediatric health care around the world. Children's Colorado offers a full range of family-centered care in its emergency, emergency and specialty care centers throughout Colorado, including on the Anschutz Medical Campus, and throughout the region. The Colorado Children's Hospital in Colorado Springs is expected to open in mid-2019 and will be the first children's hospital in southern Colorado. For more information, visit http: // www.
About the University of Colorado School of Medicine
Professors from the University of Colorado's School of Medicine are working to advance science and improve care. These faculty members include physicians, educators, and scientists from the UCHealth Hospital of the University of Colorado, Colorado Children's Hospital, Denver Health, National Jewish Health, and the University of Colorado. Veterans Affairs Eastern Colorado Health Care System. The school is located on the Anschutz Medical Campus, one of the four campuses of the University of Colorado system.
This program is supported by the US Department of Health and Human Services (HHS) HRSA under the network UA6MC31101 Research Network for Children and Youth with Special Needs. health care. This information or content and conclusions are those of the author and should not be construed as the official position or policy of HRSA, no endorsement should be inferred by HRSA, HHS and the US Government.
This story was published on: 2019-07-12. To contact the author, please use the contact information in the article.
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