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An 18-year-old boy died in hospital after an allergic reaction to antipsychotic drugs, according to his parents he should never have been administered.
They became detectives after stating that their son had received the drugs three times, despite many requests from doctors not to use them.
He died after receiving olanzapine while he was being treated for a convulsive seizure. He endured "catastrophic" brain damage because of the drug commonly used to treat schizophrenia and bipolar disorder.
Tom and Paula McGowan – the parents of two other children – claim that the eventual death of their slightly autistic son, Oliver, aged 18, was changed.
Oliver died after receiving olanzapine while he was being treated for a seizure. On the picture at the hospital
Professor Paula, 53, and Air Force Squadron Leader Tom, 50, used an access to information request to obtain an interim report in which they wondered why their son had received the drug that killed him.
Mr. McGowan told the Sunday Mirror that the final report was a "masked" and diluted version of a draft that they had received.
The newspaper saw the preliminary report which asked: "Was the death, overall, potentially avoidable?" A box below is ticked "Yes", they reported.
This contrasts sharply with the final report, the final version of four projects, which contained the same white box and lacked essential pbadages, according to parents.
During an investigation, the coroner was not blamed, but a review of Learning Disorder Mortality (LeDeR) was ordered and conducted by the local clinical commissioning group .
This is the "underlying reason" for the clinical decision to give Oliver medications containing olanzapine.
The first report also reported that Oliver's parents "did not feel listened to".
Four changes later and the final report read as follows: "The coroner concluded that the death was inevitable and the measures taken by the clinical team were reasonable."
NHS England intervened to investigate the investigation process. Paula said it was "amazing" to see how different the two reports are.
Tom (left) and Paula McGowan (right) – parents of two other children – claim that the death of their slightly autistic son, Oliver, aged 18, was changed
The Oliver family says that he received olanzapine on his first visit to the hospital in 2015 as a result of a mild epileptic seizure.
It is there, at the Bristol Children's Hospital, that doctors confused his autism symptoms with a psychotic episode and administered him the drug for the first time.
Paula, also the mother of Adam, 26, and 23-year-old Heather, said: "The reaction was so severe: it bit its skin, sweated, stirred.
Oliver started having hallucinations. It was horrible. We asked that he be stopped. I saw him almost die of meningitis, but what I saw that day was much worse. & # 39;
Thanks to these drugs, the young Paralympic hopeful could have up to 30 seizures per day, whereas he was normally only two per month.
What is olanzapine and what is its relationship with people with seizures?
Olanzapine, sold under the brand name Zyprexa among others, is an atypical antipsychotic drug primarily used to treat schizophrenia and bipolar disorder.
For schizophrenia, it can be used for both the onset of a new disease and its long-term maintenance. It is taken orally or by injection into a muscle.
Use of olanzapine in patients with a history of seizures: Olanzapine has a profile similar to that of clozapine and shares its potential inducing seizures. Typical antipsychotics such as haloperidol might be a safer option for these patients.
It should be used with caution in patients with a history of seizures or with conditions that may lower the seizure threshold. Unconventional seizures in patients treated with olanzapine. In most cases, a history of seizures or risk factors for seizures has been reported.
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This was noted by consultants who also noted that there was "no clear evidence" that Oliver had psychosis.
Despite this, he received haloperidol, an antipsychotic, after a further visit to the hospital in May 2016, following seizures that his parents had caused by olanzapine. a year ago.
His mother said that while he had his arms around her, hugging her with love, the doctors withdrew him aggressively and appeared to be in "attack mode".
She said that she was "shocked" and "scared" by the reaction.
He was taken to the hospital one last time five months later.
Ms. McGowan said, "I took my son to the hospital with a mild epileptic seizure and he died.
"He told me that he would only leave if they did not give him drugs. He said, "They bother my brain, do not give it to me." I promised that they would not do it and I got the documents showing that he was allergic.
Oliver had pneumonia and sepsis after being placed in coma at Bristol Southmead Hospital.
Oliver 's mother said the doctors had blamed "lighting" when she complained about her "blue and swollen" color, adding that "something was wrong". did not go in his brain ".
Shortly thereafter, Mr. and Mrs. McGowan learned that while he was in a coma, Olanzapine had again been administered to olanzapine in order to "prevent behavior "during his visit, according to doctors.
Oliver (center) photographed with his parents, Paula and Tom, who are now campaigning for NHS staff to be better trained in understanding the behavioral effects of conditions such as autism
Ms. McGowan told The Sunday Mirror, "We did everything to stop that, but they still gave him the medicine."
The next "punch to the face" happened when they were told that Oliver would need an operation on a severely swollen brain.
Oliver had a strong allergic reaction to drugs and later examinations showed "catastrophic and irreversible brain damage".
Tom and Paula photographed with Oliver (second from left) and their two other children, Adam, 26, and Heather, 23
The 18-year-old died on November 11, 2016, after surviving four days after powering off the survival system.
At one investigation last year, the badistant coroner, Dr. Peter Harrowing, stated that olanzapine was an "important contributing factor" in Oliver's death, but concluded that doctors could not predict his reaction "very rare".
Campaigning for NHS staff to be better trained to understand the behavioral effects of conditions such as autism, Ms McGowan said, "We will never be able to conquer his death, it is as if a light it was extinct. We want to make sure that it does not happen to another family. & # 39;
North Bristol NHS Trust said: "As the coroner concluded, the treatment was properly prescribed and Oliver unfortunately suffered a rare side effect that could not have been predicted."
For more information on Oliver's story, see here.
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