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Brooklyn, New York, March 20, 2019 / PRNewswire / – The Peggy Lillis Foundation (PLF) today announced the fourth National Day of the C. diff Summit and Lobby. Monday, April 8, 2019 at Kellogg Conference Hotel in Gallaudet University in Washington DC. The summit brings together 100 leaders in the fight against C. difficile infection, a superbug responsible for 30,000 US deaths each year. More than 500,000 Americans still suffer from this infection each year and more than 100,000 suffer multiple recurrences. The Centers for Disease Control reported that C. diff was an urgent threat to public health in 2013.
In 2018, PLF organized the very first federal lobby day organized by C. diff Advocates. Each year, PLF invites medical, public health and local community leaders to meet with volunteer representatives who have fought C. diff or lost loved ones. This year, 25 lawyers from 14 states, including California, Florida, Georgia, Missouri, Nevada, Ohio, Rhode Island, and West Virginia, participate in.
According to the executive director of PLF Christian John Lillis"Unlike better-known diseases such as cancer and HIV / AIDS, most superbugs, including C. difficile, have lacked a movement of advocates for patients and their families." at $ 20 billion annually. PLF is building a national movement to end the damage badociated with C. difficile and our summit is a key element in convening and catalyzing this movement. "
The summit will be followed by a day of lobbying on Tuesday, April 9when the PLF Council of Lawyers, as well as industry partners and non-profit organizations, meet with members of Congress to brief them on C. difficile and commit to fighting them. "Thanks to our suffering and loss, we have become a family on a mission," said Lucy Mead, a lawyer, a nurse who graduated from Florida who lost his mother, Edith, to C. diff in 2018.
The summit will include sessions on accurate diagnoses, the designation of notifiable diseases, the Coalition of Antimicrobial Resistance Fighters and the development of public policies to end this urgent threat to public health.
The fight against Antimicrobial Resistance (AMR) requires the establishment of a strong and motivated coalition of patients, professionals and advocates, who unite in a large and concerted effort to s'. address the many factors and behavioral changes needed to meet this enormous challenge. This is why the Peggy Lillis Foundation and many of its members have joined the Coalition of Antimicrobial Resistance Fighters to share their personal and professional experiences in order to raise awareness about the need to fight against resistance to disease. antimicrobials.
The summit is free, but the number of places is limited. Registration is on a first-come, first-served basis.
Financial support for the C. diff 2019 National Summit and Lobby Day is provided by Pfizer, BD, Merck, Pew Charitable Trusts, Vedanta Biosciences, TOMI Environmental Services, Rebiotix, Thermofisher Scientific, Seres Therapeutics and Summit Therapeutics.
About the Peggy Lillis Foundation
Founded in response to April 2010 death of a 56-year-old man, Brooklyn As a kindergarten teacher, the Peggy Lillis Foundation is creating a national movement to end the damage caused by C. difficile by informing the public, empowering advocates and shaping policies.
SOURCE Peggy Lillis Foundation
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https://peggyfoundation.org
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