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The parents of a "beaver" who trotted in doormats and CDs were forced to pull out of their living room heaps of household items, lest she eat them.
Little Ruby Smith, a native of Bedford, suffers from an extremely rare neurological disorder that causes epilepsy, paralysis and pica, a disease that prevents her from eating non-food foods.
Mother Claire Parsons had to ban Ruby from going alone in the garden or kitchen because she's known to eat gravel, grbad and cat food if she's left alone .
She even had a chance on her cradle, which has marks of gnawing on the wood.
Now, 44-year-old Claire has been forced to mobilize crowdfunding for a special-needs bed that includes "a plastic mouthguard" so her "special little girl" can not eat it.
"She always has something in her mouth, even the cat, she's like a little beaver," Claire said.
"If she can get her hands on it, she'll eat it.
"The wooden bar [of her cot] was chewed in a few months. I have to be careful what I cover so that she can not chew that either.
"She has nothing to find in our living room – no books, no DVDs, nothing she can tear and chew."
Ruby has an alternating hemiplegia of childhood (AHC) – an extremely rare neurological condition that causes epilepsy, paralysis, decreased muscle tone, cerebral palsy, and uncontrollable body movements.
Pica symptoms
Pica is a eating disorder that involves eating foods that are not actually food.
There are no laboratory tests for the condition yet.
Symptoms may include:
- Persistent consumption (for more than one month) of substances that are not foods and that do not provide nutritional value
- consumed foods tend to vary with age and availability. It can be paper, soap, fabric, hair, string, wool, earth, chalk, talc, paint, gum, metal, pebbles, charcoal, ash, clay, starch or ice
- the consumption of these substances must be inappropriate from the point of view of development (that is to say that babies tend to put things in the mouth, but a child of five years should have grown up with this habit )
Pica is often badociated with other mental health problems and learning difficulties.
This can affect children, adolescents and adults.
Pica is also considered a common symptom of AHC, and it encourages people to eat non-food items such as hair, dirt or moss.
The first brave little girl was diagnosed with AHC in 2016 after repeated visits to the Bedford Hospital for genetic testing.
She began having seizures at the age of five days and would be transported to the hospital "three or four times a week".
Now four years old, Ruby has a mental age of about 10 months.
Like a baby, she chews and licks things rather than using her other senses.
"(Pica) can be very dangerous, and children with this disease tend to choke on paralysis and low muscle tone," continued his mother.
"Paper is one of its favorites – like on video game boxes, so we do not keep them, or CD cases.
"She has already tried to eat grbad and gravel.
"We also had one of the fur mats and she was choked – she took out a big piece of it – her father, Sam, saved her life – I was going to call an ambulance. "
The bed, which must be manufactured by a specialized firm, costs £ 1,500 and will be made from wood covered with plastic.
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"This bed will be a safe space for her, that's part of what she is," Claire said.
"We need to prevent her from choking because that is what matters most."
To donate to Ruby's bed, visit his JustGiving page.
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