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Mental health patients want descriptions of mental health diagnoses to better reflect how they feel about living with their conditions in the World Health Organization's World Diagnostics Handbook – according to a new report Lancet Psychiatry.
The study, carried out by British and American researchers from Norfolk and Suffolk NHS Foundation Trust (NSFT), the University of East Anglia and Columbia University, in collaboration with the WHO The Department of Mental Health and Substance Abuse is the first to report service user feedback on such a guideline for mental health diagnosis.
the WHOThe International Clbadification of Diseases (ICD) of 194 countries is the most influential and widely used clbadification guide, with approximately 55,000 unique codes for injuries, illnesses and causes of death.
The researchers reviewed the latest revision (ICD-11), which will come into effect in 2022, and focused on its chapter on mental, behavioral and neurodevelopmental disorders.
Researchers have asked patients with schizophrenia, bipolar disorder, depression, anxiety, and personality disorders in the United Kingdom, the United States, and India to compare the results of the study. WHO descriptions of their diagnoses with their own experiences.
Senior Researcher Dr. Corinna Hackman, from Norwich Medical School and the NSFT of the UEA stated, "ICD is the most widely used system for diagnosing people with mental health problems around the world. This greatly influences our understanding of mental illness and the politics and delivery of mental health services.
"Despite this, the perspectives of service users have not been included in previous versions of the DCI.
"We wanted to get a return from international service users on how the WHO intends to clbadify mental health problems, and in particular – if their diagnostic descriptions are consistent with the experiences experienced by patients.
"We found that the WHO Diagnostic descriptions did not always correspond to the mental health experiences experienced by people. In particular, the descriptions focused on the external symptoms, things visible from the outside, rather than the experience felt internally.
"Our results suggest that this could have unintended consequences for service users: feeling alienated and misunderstood.
"People with bipolar disorder, for example, thought that the WHO The description reflected only the negative aspects of the illness and identified as a positive aspect the increased creativity badociated with mania.
"People with schizophrenia said that WHO The wording of the diagnosis did not cover things such as difficulties in communicating with others, including feelings of isolation and alienation from others.
"In some cases, the wording was confusing or reprehensible – for example, the use of the word" delay "for" depression ".
"This research provides a unique insight into the perspectives of service users and is truly a defining moment in the diagnosis of mental health," she added.
"This research offers a unique insight from the perspective of service users and is truly a turning point in the diagnosis of mental health,"
Participants also compared WHOThe wording of the clbadification with secular alternative translations created by the research team.
Research Associate Dr. Caitlin Notley, also from EBU's Norwich School of Medicine said, "Participants indicated that lay summaries were much clearer, more accessible and easier to understand – and that they felt they were able to sound much better with their own experience.
"The participants reported that the lay summaries were much clearer, more accessible and easier to understand – and therefore felt that they resonated much better with their own lived experience."
"What we showed is that patients would benefit from a version of WHO disease clbadification system that is easier to understand and includes more information about the experience felt.
"We hope that the changes we recommend will also help clinicians to better understand and experience the same experience as service users."
The study was undertaken by NSFT, UEA and the London School of Hygiene and Tropical Medicine, in collaboration with Columbia University, NYC, a peer-led service in New Jersey and the Indian Institute of Medical Sciences, New Delhi .
It is hoped that the results will help inform future revisions to ICD-11.
Results translated into recommendations co-produced for WHO, which has put in place a review process and consideration of incorporation into revisions of clinical descriptions and diagnostic guidelines for ICD-11 Mental, Behavioral and Neurodevelopmental Disorders.
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