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VIVA – Thalbademia remains one of the most financially burdensome diseases in Indonesia. Even on the basis of reports from the Social Security Organization Agency (BPJS), thalbademia funding since 2014-2017 reached Rs.1,800 billion.
This places disease fifth among the total funding for the BPJS program, after heart disease, kidney failure, cancer and stroke.
"It's a heavy burden for the country, at birth, if it was not good at the time of his birth, 10 years have pbaded away, he can now become an adult, but we must continue to transfuse many complications, but our goal is our goal, "said the expert staff of the Ministry of Health, Prof. Dr. dr. Akmal Taher, Sp. U (K) when he met on the sidelines of the meeting of the 2018 thalbademia forum in South East Asia which was held at the Ministry of Health, Wednesday, November 28, 2018.
Even these costs are only for maintenance. In the meantime, there is no specific funding allocation for the prevention of thalbademia. Until now, inspection or screening for the prevention of thalbademia is still voluntary.
"It's not just about money, it's about raising people's awareness, it's not about religion, about human rights, and so on. the strategy must be complete, "said Akmal.
According to him, with this meeting, the government wants to be able to provide information on the experiences of Southeast Asian countries in the treatment of thalbademia. It is also expected to become a policy later.
Ten countries, namely Indonesia, Thailand and Malaysia, participated in the South East Asian Thalbademia Forum (SEATHAF). Vietnam, Philippines, Myanmar, Singapore, Laos (observer), Cambodia (observer) and Brunei Darussalam (observer) This activity is part of a cooperative effort with the ASEAN countries to further raise the country's awareness of thalbademia and establish cooperation for sharing information and information. 39, experiences in the form of best practices (best practice) in the prevention and control of thalbademia.
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