A mother says that the condition of her two-year-old son's skin is so severe that he "screams in pain" and can not sleep more than four hours at night.
Theo Burchell contracted this skin condition at the age of six months and in a few weeks she had covered her entire body and even her face.
Mom Hannah, 26, who called 999 once because of her son's painful eczema, said his skin was so raw that he had already been mistaken for a burn victim.
Hannah says that it's so bad that it scratches the skin until it bleeds and that it's constantly relieved to fall asleep.
The bar and the mother of two children said: "To see him suffer like this breaks my heart, he wakes up during the night shouting for help.
"We are with him four or five times a night.
"He hardly sleeps, he does not get more than two hours every night.
"It's horrible, it took him part of his childhood, he's missing a lot of things, he just took his life in hand."
Although we have tried dozens of steroid lotions and creams to treat chronic itching, which causes red, dry, chapped skin, nothing has worked.
When her lightbulbs went on, Hannah said that Theo was screaming in pain and that it had gotten so bad last year that she had to dial 999 for help, which made it difficult for her to get her. He admitted to hospital.
He was transported to Bristol Hospital where he spent five days receiving antiviral medication.
She said: "We had no choice but to call 999. He shouted" help, help, it hurts ".
"His skin was oozing and his clothes were sticking in. He could not catch his breath, he was screaming so much.
"The blisters were oozing and he was inconsolable, he was crying so much that he could not swallow and could barely breathe.
"They had to give him morphine in the ambulance he was in. It made me cry to see him like that.
"He has not been out for days in the hospital, he is usually such a happy and moving child, but he was really shot."
Theo now sleeps in the same room as his parents and needs to be comforted every night to be able to fall asleep.
Hannah said, "He's so scared and wakes up screaming in panic, and when he gets up in the night, he'll just scratch more.
"It has constantly exhausted us and is exhausting.
"His skin is really rough and crusted, he shouts" stop "when you put the cream on because it's too painful."
Hannah says people often ask what's wrong with her son, who has even been mistaken for a burn victim.
Theo is scheduled to begin school in September 2012, and Hannah says she is concerned that Theo is being bullied by other children if her condition does not improve.
Hannah says that she feels that they are running out of treatment options.
Hannah, who lives with Lee, 36, a freelance driver, and Theo's brother, Bobby, five weeks old, said, "I do not know if he'll be able to run the school. he does not stop scratching himself and he gets intimidated?
"This has prevented him from seeing friends, but we are trying to treat him like a normal child." He loves being outdoors to play.
"But he does not know why he's so hurt, it's upsetting to see."
Theo attends a play group but his condition prevents him from being able to play with his friends in the play centers.
Although the cause of eczema is unknown, it is often caused by soaps, detergents, stress and even bad weather.
When Theo began having eczema at the age of six months, he had only started with rash patches. Hannah brought her to the GP in March 2017.
His mother was advised to hydrate Theo's skin and told him that the eczema was normal, but he quickly developed a huge, painful crust that covered his body.
Hannah said that she visits her general practitioner twice a month and that she has repeatedly been prescribed different creams, which have had little or no impact on her condition.
Theo was referred to a dermatologist at Bristol Children's Hospital last September and was prescribed a steroid-based cream.
But even that did not cure the rashes, which became later this month an eczema herpeticum – an extreme form usually caused by the herpes virus.