Families share the devastating impact of a rare disease resembling polio, an acute flaccid myelitis



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A rare but potentially paralyzing disease called acute flaccid myelitis, or AFM, has parents on alert. The Centers for Disease Control and Prevention estimates that the AFM has expanded to 24 states with 72 confirmed cases, including 10 new ones.

Camdyn Carr, age 4, is only one child affected by the disease. A photo of Camdyn taken on August 30 shows that he was infected with a sinus. But after 72 hours he was paralyzed.

"My son died on Tuesday," said his father, Chris. "He coded."

Fortunately, the doctors have reinstated Camdyn. Now, he is undergoing intensive treatment at the Baltimore Kennedy Krieger Institute. But an acute flaccid myelitis ravaged his body and he has a tube to help him breathe, making only a slight movement of a hand and a foot.

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<p>"I have good hope for these kids," said Rebecca Martin, who runs the Rehabilitation Center. "They are progressing slowly and they can really change their level of function with the right kind of therapy that we offer."</p>
<p>It's a road that Christa Bottomley and his 6 year old son, Sebastian, know well. Two years ago, when MFA cases reached their last peak, Sebastian's cold turned into a polio-like illness and caused almost complete paralysis. But after 2,000 hours of rehabilitation, he can dress alone, feed himself and stand up. But learning to walk again has been a slow and exhausting process.</p>
<p>"Sometimes he says things like," Mom, why can not I walk like everyone else does without all this work? "And I said," You know, God knows you were strong enough to handle this, "Bottomley said.</p>
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Sebastian Bottomley is following a treatment after having AFM.

CBS News

In an interview with John Dickerson, co-host of CBS This Morning, Director of CDC, Dr. Robert Redfield says that the agency still does not know what causes the disease that looks like polio, but that she "does not seem to be transmissible from man to man".

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