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Breast Cancer Care said that thousands of patients were still deprived of essential care three years after the government had promised them access to a designated nurse for all cancer patients.
"A specialist nurse is the most important aspect of their care"
Samia al Qadhi
The charity issued its warning today following a request for access to information to NHS suppliers in England, Scotland and Wales.
The figures obtained reveal that 72% of NHS trusts and health boards do not provide dedicated nurse to people with incurable breast cancer.
The number of trusts and boards providing nursing support has increased by only 7% in the two years since the charity's last study.
Surveys on the experience of cancer patients revealed that people with a clinical nurse specialist were more likely to be informed of side effects and to have the opportunity to discuss their needs and to discuss their concerns.
As a result, Breast Cancer Care has stated that it is calling for urgent funding to recruit and train nurses to fill critical gaps.
He said that he wished all diagnosed with the incurable disease to have a "secondary support package" at the time of diagnosis.
This would allow them to use a dedicated nurse to coordinate care and refer them to appropriate support services to provide the vital and specialized support they need to live well.
Samia al Qadhi, Executive Director of Charity, said, "Our amazing discoveries reveal just how much NHS nursing care for people with incurable breast cancer has stagnated.
After this life-altering, life-limiting diagnosis, patients continue to be abandoned without the ongoing, specialized support they need to manage complex treatment and debilitating side effects, such as chronic pain and fatigue.
"People living with incurable breast cancer tell us that access to a specialist nurse is the most important aspect of their care. Otherwise, they feel isolated, forgotten and invisible, "she said. "Today's failures must not be neglected.
"We call on all UK governments to create a" secondary support package "for incurable secondary breast cancer so that everyone has access to the specialized support they need, when they need it.
Lack of nursing support for incurable breast cancer
Samia al Qadhi
She added, "Funding for recruiting and training the critical specialist nurse clinicians must be available, starting with a commitment to NHS England's long-term plan published next month."
Breast Cancer Care said its numbers also revealed other failures in caring for people with incurable breast cancer in the UK:
For example, 40% of trusts and boards of directors were unable to indicate, when asked, how many patients with secondary breast cancer were currently being treated. charge.
In addition, 70% of hospital organizations in the United Kingdom do not assess the emotional and physical needs of people during diagnosis and treatment changes.
At the same time, 80% of hospital organizations do not provide all patients with a summary at the end of each treatment, including how they responded to treatment.
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