A mother whose first pregnancy has caused the death of a stillborn twin has a newborn and a healthy life after the transplant



[ad_1]

A woman who has just emerged from coma after learning that her baby was stillborn after developing a life-threatening liver disease during her pregnancy revealed her joy at finally becoming a mother, thanks to a transplant.

Louise Prashad, a 25-year-old city councilor from York, suffered the tragic double blow after being struck by the dangerous state, called "acute fatty liver of pregnancy".

The twins Mia and Leo were stillborn at 37 weeks, but Louise only learned of their deaths three weeks later, after coming out of the coma, describing this moment as the most traumatic of her life.

After vomiting blood during the last stages of her pregnancy, Louise lost consciousness and the doctors diagnosed the condition of the liver before raising her to the top of the list of people on the European organ donation registry.

Louise Prashad, 25, suffered from rare liver disease during her first pregnancy in 2015, who saw her fall into a coma and later discover that her twins were born dead. Louise, healthy again thanks to a liver transplant, welcomed a little girl, Ava, in March 2018

Louise Prashad, 25, suffered from rare liver disease during her first pregnancy in 2015, who saw her fall into a coma and later discover that her twins were born dead. Louise, healthy again thanks to a liver transplant, welcomed a little girl, Ava, in March 2018

Louise photographed at the hospital after falling into a coma after developing the disease called "acute pregnancy fat liver" while she was carrying twins in 2015. While Louise survived the ordeal she woke up to get news of the tragic news that her babies had not survived.

Louise photographed at the hospital after falling into a coma after developing the disease called "acute pregnancy fat liver" while she was carrying twins in 2015. While Louise survived the ordeal she woke up to get news of the tragic news that her babies had not survived.

The young mother, counselor of Holgate, York, after the birth of her daughter Ava, today a girl. She decided to try to fall pregnant again after a liver transplant, but feared that she would develop this disease again. Fortunately, Ava was born healthy and Louise had a smooth pregnancy

The young mother, counselor of Holgate, York, after the birth of her daughter Ava, today a girl. She decided to try to fall pregnant again after a liver transplant, but feared that she would develop this disease again. Fortunately, Ava was born healthy and Louise had a smooth pregnancy

Louise survived only thanks to a liver transplant offered by a woman in her fifties and years and thought that she could never carry a child after the ordeal.

Now, Louise and her husband Max, who live in the Holgate area, have since raised £ 940 for a Memorial Bench at Rowntree Park in honor of Mia and Leo and other families who have lost their lives. child.

Louise says that she was torn by grief after the twins' death and virtually gave up all hope of becoming a mother again.

His reluctance was due to one in four chance that the disease will recur during another pregnancy.

Louise with her husband Max, 30, and her daughter Ava, shortly after her birth. Louise said that her daughter was "spitting image". of his dead brother and sister

Louise with her husband Max, 30, and her daughter Ava, shortly after her birth. Louise said that her daughter was "spitting image". of his dead brother and sister

Louise had hoped to become a mother again after her first pregnancy, but she and Max made the decision to try to have another baby one year after his recovery. On the picture: Louise holding Ava on her lap

Louise had hoped to become a mother again after her first pregnancy, but she and Max made the decision to try to have another baby one year after his recovery. On the picture: Louise holding Ava on her lap

The happy family during a day of sightseeing: Louise and Max now sensitize people to the disease and are raising money to buy a memorial bench in their home town of Holgate.

The happy family during a day of sightseeing: Louise and Max now sensitize people to the disease and are raising money to buy a memorial bench in their home town of Holgate.

"I finally got pregnant with Ava but it was the most nerve-racking pregnancy," says Louise of her daughter's port after the loss of her first two children.

"I finally got pregnant with Ava but it was the most nerve-racking pregnancy," says Louise of her daughter's port after the loss of her first two children.

However, after taking the courageous decision to try to have another baby with her now husband Max, 30 years old and working in a restaurant, she became pregnant with Ava after trying for a year.

Louise was not convinced that little Ava, who is now one, was born alive until she arrived in the world on March 20, 2018.

She said, "I would never have thought of having another child. When I decided to try again, I had to wait over a year because the medications I was taking were really harmful.

"We started to try and it took a year and a half. I finally got pregnant with Ava, but it was the most nerve-racking pregnancy. I really had a hard time enjoying it.

"When you're pregnant, even the smallest thing can strain you, but I've been waiting all the time.

The young mother said that she was constantly doubting herself when Ava was finally born

The young mother said that she was constantly doubting herself when Ava was finally born

Louise wrote a letter to the donor's family telling her where her mother's organ had gone and what Louise had done thanks to the donor.

Louise wrote a letter to the donor's family telling her where her mother's organ had gone and what Louise had done thanks to the donor.

"I did not believe that she was going to be alive until I gave birth. I had no right to have a natural birth, I had to have a planned cesarean section to make sure she would be there safely.

"As soon as I saw her and heard her crying, I thought," She's really here and I can stop doubting myself. "

I finally got pregnant with Ava, but it was the most nerve-racking pregnancy. I really had a hard time enjoying it. I was constantly on hot coals …

"She's the crackling image of Mia and Leo, the similarities are so weird – black hair, eyes of the same color, olive skin, pretty button nose."

After the birth of Ava, Louise thought first of her son and daughter and the woman who had donated the organ.

She wrote a letter to the donor's family to tell him where his mother's organ had gone and what Louise had done since.

Louise became pregnant with twins Mia and Leo in August 2015, at the age of 21, while she was a law graduate and had been with her boyfriend at the time , Max, only for six months.

Louise and Ava. The strong mother of a child wants to make all of her children proud - Ava and her twin brother passed away

Louise and Ava. The strong mother of a child wants to make all of her children proud – Ava and her twin brother passed away

Look at that smile. Louise says that she is wearing a scar on her belly resulting from an emergency transplant and a cesarean section following her first pregnancy. On the picture: The family of years later, smiling and happy

Look at that smile. Louise says that she is wearing a scar on her belly resulting from an emergency transplant and a cesarean section following her first pregnancy. On the picture: The family of years later, smiling and happy

She had a difficult pregnancy and began to experience extreme fatigue, illness and abdominal pain in the months leading up to her delivery.

Louise was taken to the hospital after vomiting two liters of blood before falling into unconsciousness as a result of complications related to her pregnancy.

Doctors later discovered that Louise had been struck by a potentially fatal "pregnancy fat liver" that affected one in 10,000 women. Mia and Leo were therefore "asleep".

She has a scar on her belly resulting from the emergency graft and caesarean section. Louise sees these scars as a brutal reminder of her survival and gift of life, but also of the devastation she suffered.

Louise underwent a liver transplant while she was unconscious and her chances of survival were very slim, she said.

The "acute fatty liver of pregnancy" affects one in 10,000 women and can be fatal

The "acute fatty liver of pregnancy" affects one in 10,000 women and can be fatal

Louise and Max after the birth of Ava in 2018. April 25 would have been the birthday of his brother and sister, Leo and Mia.

Louise and Max after the birth of Ava in 2018. April 25 would have been the birthday of his brother and sister, Leo and Mia.

After she awoke, she could not remember the months that preceded her illness.

During her convalescence at the hospital, Louise had to be informed of the terrible news that her twins had died.

Louise said, "Mom came and announced that Mia and Leo were no longer there. I shouted the place.

"It was at that moment that everything seemed real and that my brain came to the idea that they were no longer there.

What is the acute fatty liver of pregnancy?

What it is:

Some women develop a type of fatty liver during the last trimester (the last three months) of their pregnancy; this is what is known as acute pregnancy fatty liver (AFLP). AFLP is a very rare disease (it occurs in about one in 20,000 pregnancies) and is more common during first pregnancy, in male babies and twins.

Is there a cause?

It is not known what causes this pregnancy-specific liver disease, but some believe that it is a variant of pre-eclampsia (elevation of blood pressure and protein presence in urine caused by pregnancy). It has also been associated with a hereditary enzymatic deficiency called long-chain acyl-CoA dehydrogenase (LCHAD) in babies.

LCHAD deficiency is a rare autosomal recessive disorder. This means that a gene must be inherited from both parents for an individual to be affected.

Men and women often do not know that they carry this modified (mutated) gene, as their body can continue to metabolize fatty acids normally. However, when the mother and father carry the gene and both genes are transmitted to the baby, the baby is unable to metabolize certain fatty acids and accumulation can occur in the uterus.

Unmetabolized free fatty acids return from the baby via the placenta to the mother's blood. This can lead to liver stress in the mother, leading to an accumulation of fat in the liver (fatty liver disease).

What are the symptoms?

The symptoms of AFLP are often nonspecific and can be mistaken for another condition, making early diagnosis difficult. The symptoms of AFLP may include:

• nausea and vomiting

• lack of appetite

• abdominal pain and indigestion

• does not feel specifically (malaise)

• excessive fatigue (fatigue)

• jaundice – a condition in which the whites of the eyes turn yellow and, in more severe cases, the skin also turns yellow (for more information, see the relevant words)

• excessive thirst

If you are pregnant and have any of these symptoms, you should make an urgent appointment with your midwife or doctor. If your symptoms are severe or begin to worsen, you must go directly to the hospital.

Acute hepatic steatosis in pregnancy is a very serious condition that can cause liver and kidney failure and be life-threatening for both mother and baby if it is not diagnosed.

Source: British Liver Trust

"It was the most traumatic experience of my life. I've somehow found that inner strength that I needed to improve to make sure they had the best start possible. They deserved more than the hand they had been given.

& # 39; Everything was about them and trying to celebrate their little life. I was numb.

Louise had to learn to walk and write again, but once she was released from intensive care, she managed to visit the chapel of rest and spend time with Mia and Leo before the funeral.

She said, "On April 25, it will be the birthday of Mia and Leo. So we hope the bench will be in place by then. I was trying to think of something positive that I could do.

Louise and Max Prashad with their daughter Ava at the park on a sunny day. Louise is still following consultations and physiotherapy to improve her mobility, but she is determined to make her children proud by educating her clients about organ donation and liver disease during pregnancy.

Louise and Max Prashad with their daughter Ava at the park on a sunny day. Louise is still following consultations and physiotherapy to improve her mobility, but she is determined to make her children proud by educating her clients about organ donation and liver disease during pregnancy.

"The last few years have been a whirlwind of emotions and grief, which never really stop.

"I wanted something in our hometown that we could visit at Ava on special occasions, when we needed time to think about them or to have a hard day.

"Somewhere we could go is a memorial and not a grave.

"I can not even begin to explain how perfect my children were, I always think of them every day. The pain never disappears.

Louise is still following consultations and physiotherapy to improve her mobility, but she is determined to make her children proud by educating her clients about organ donation and liver disease during pregnancy.

She said: "Awareness of liver problems during pregnancy is very discreet. More needs to be done to educate the general public.

The Just Giving page of Louise and Max, where they raised £ 940 for their memorial bench for Mia and Leo

The Just Giving page of Louise and Max, where they raised £ 940 for their memorial bench for Mia and Leo

Skin itching, abdominal pain, yellowing of the skin, excessive thirst, fatigue, bleeding gums are all symptoms.

"I think if you're willing to receive an organ, then you should be ready to donate.

"I was already on the organ donor registry, but I did not think about it for a moment. It was just something that I checked on my driving request, but that's a lot more than that. You save someone's child, someone's mother, love someone's life. & # 39;

"It's not my fault that I found myself in this situation and if there was no donor available, I would not be here and my husband would have lost three people this year. day. "

Over the last three years, Louise has continued to exude her strength and is now trying to use her experiences to benefit other families.

Friends and family members organize the York 10K in memory of Mia, Leo and organ donors. All funds raised will be donated to local charitable donations.

[ad_2]

Source link