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It is cruel to say, but people with an orphan disease are rarely reimbursed for the drugs they take, when these drugs exist … For small patients with spinal muscular atrophy, finally good news: their Medicines will be reimbursed!
Health Minister Maggie De Block (Open-VLD) announces it in the first place: Belgian patients suffering from spinal muscular atrophy will be able to be reimbursed nusinersen, the drug used in the treatment of this affection. This disease, also called 5q-SMA, is comparable to Charcot's disease, but for children.
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