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Everything starts in August 2017, when Margaux was born. Twelve hours after the child's departure, the child is the victim of convulsions, which are today daily. He is diagnosed with a rare genetic disease called Severe Epileptic Encephalopathy linked to a mutation of a gene. The doctors foresee a life expectancy of 10 years maximum to the girl. To date, no treatment exists to treat this gene, whose function is to allow the sending of information to the brain.
His parents do not give up, on the contrary. They created the badociation "Margaux-born to shine" in order to improve its daily life and opened a crowdfunding campaign on Gofundme to raise funds to buy specialized equipment, educational, medical or stimulation. To date, more than 500 € have been collected.
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