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A young Talcahuano native remains hospitalized at Las Higueras hospital because she is suffering from a strange illness and is one of eleven cases diagnosed in Chile.
The student needs 10 blood donors a day and Eculizumab – or "Soliris" by his trade name – a drug that costs more than 30 million pesos to start a treatment, reported BIO radio. Organic.
Javiera Mansilla, 17, is the eleventh Chilean patient diagnosed with atypical hemolytic uremic syndrome, a condition that keeps her hospitalized.
The girl is in her fourth year at the Amanecer School in Talcahuano and arrived at the health center on June 1, suffering from acute renal failure and anemia.
After a series of exams, he was diagnosed, said his sister, Lorena Rodríguez, who explained that none of the tests that were performed have given the expected results.
He reported that "they applied a remedy called rituximab and he did not stabilize," and explained that his illness begins to cause small thrombi in his blood vessels, which begin to primarily affect the kidney, then will affect to other important organs such as the lungs or heart.
A drug that costs more than 32 million pesos can give you a better quality of life: that is Eculizumab.
Usually, a monthly dose is used, says Lorena, and the treatment is for a lifetime.
He said that he knew of a case in which Fonasa funded the treatment, but that "experience shows that in the rest of the cases, legal proceedings are initiated".
Because of Javiera's disease, she needs 10 blood donors each day to go to Las Higueras Hospital, Monday to Friday, from 8:00 to 13:00.
Meanwhile, those interested in helping the child can contact their sister, Lorena Rodríguez Alarcón, at +569 7649 4496.
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