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Her rare condition was unknown, so she had several treatments that did not affect her health.
What would you do if sun rays could kill you? Although this seems crazy, it is the case of Fátima Pérez, a 54-year-old woman from the Dominican Republic, who was isolated from the world because of her illness.
According to the information of specialists who treated her, Pérez was born with xeroderma pigmentoso (XP), a strange genetic disease that affects the skin. Very severe and debilitating pain is one of the problems that patients face when exposed to artificial or ultraviolet rays .
I can not leave my house, even if the day is cloudy. The lights in my house are off because they've also hurt me. It is an evil that no one should have "
The interested person has created a page and made known his story.In addition, his goal is to raise public awareness of the disease and to help affected people.
"In 1998, while doctors still knew little about the disease, I underwent several experimental treatments that were only detrimental to my health. radiotherapy treatments caused severe skin burns, "as it is written in one of his publications.
He also reported that he had lost an eye Despaired by her situation, she went to the United States hoping to find help.
Fatima Perez still wears gloves, dark glbades, a hat, sunscreen and a coat weighing more than two kilograms to avoid being damaged by the sun.
She travels go now to a foundation that she created, the XP Luz Esperanza group, which seeks to help people suffering from the disease, mainly those with few resources.
With information from El Debate, La Verdad and Chispa
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