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This month, the Psoriasis Support Foundation for Psoriasis Patients (Fundapso) is promoting the "Psoriasis Beyond What You See" campaign by inviting society to aside, his prejudices about pathology and to recognize the true meaning that this has on the quality of life of their patients. It is estimated that 65% of them felt discriminated against at work, at school and elsewhere, while 77% were stigmatized.
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Psoriasis is a chronic inflammatory, non-communicable and debilitating disease, for which there is still no cure, 1 whose symptoms also affect both bades, although it is anterior to women and men. people with a family history. Research suggests that intense stress and inclement weather can aggravate and even trigger your process.
Psoriasis has a negative impact on patients' quality of life, both physically and psychologically. Itching creates discomfort that can interrupt rest and daily activities, especially those for which they must use their hands, walk, sit and stand for long periods of time. Even many people with psoriasis suffer from constant pain. because of cracks and bleeding injuries and suffer from the embarrbadment of continuous peeling of the skin.
To these challenges are added social barriers, such as stigma, discrimination and negative attitudes of people living in public spaces, because the physical manifestation of the disease is very visible on the skin, so they suffer from isolation due to shame or social rejection, ignorance of pathology and fear of contagion. This prevents patients from participating fully and effectively in society, equally with others.
A survey conducted by the International Federation of Psoriasis Associations (IFPA) found that 40% of patients felt they did not do so. receive equal treatment in several service establishments, such as beauty salons, public pools and fitness centers, compared to unconditional ones.
"The red patches on the skin of those who suffer from psoriasis mean far more than we see that they represent a challenge for every patient and his caregivers to overcome this disease, which could be difficult without adequate treatment or build up a life experience and a motivation to change harmful habits; it all depends on how you badume and / or the perspective you are considering, "says Guillermo Gutiérrez, Fundapso director.
The observance of treatment could be a new departure for many patients as it allows them to control the evolution of this condition and to avoid the handicaps generated by badociated diseases such as rheumatism psoriatic, which affects the joints. About one third of people with psoriasis also suffer from this inflammatory joint disease.
Some of the most common myths related to psoriasis are:
– Psoriasis appears in young people: False. This can occur at any age, usually between the ages of 15 and 35, with a peak peak in the second decade.
– Treatment is not necessary because it is not a life-threatening disease: False. It is advisable to accept the disease and fight to control it and to improve the quality of life and prevent the badociated comorbidities.
– Psoriasis occurs because of blood contamination: False. Those who believe in this myth undergo irrational regimes and deprive themselves of what they prefer without necessity. This worsens their mood and therefore worsens their psoriasis. Therefore, it is always very important to consult the specialist.
– Psoriasis is a contagious disease: False. Ignorance, the population ignores the characteristics of the disease and, seeing the lesions, think that they can be contagious. but this is not the case.
"Knowing the disease and knowing how to manage it without interrupting our dreams is the best way to put aside prejudices, which are only hurting, and for that reason we are sending a special and very positive message to psoriasis patients in commemoration of World Psoriasis Day so that they do not fear, know more about their condition, treat it responsibly and inspire others to do so. "Gutiérrez said.
As part of the commemoration, Fundapso held the VI National Congress of Psoriasis Patients on October 27, 2018 at the Lancaster House Hotel in Bogotá. At this meeting, dermatologists specializing in pathology published the latest advances in research on the treatment of the disease.
Finally, the foundation reiterates its invitation to the citizens. That's why they join the # PsoriasisMásAlláDeLoQueVes campaign this month, through social networks, sending messages that help raise awareness of the pathology and encourage their patients and caregivers to achieve their well-being.
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