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Javiera Mansilla is the name of the young woman of only 17 years who needs a medicine of 32 million pesos a month to cure the strange illness that she undergoes.
The minor is admitted to the hospital Las Higueras de Talcahuano with a diagnosis of Atypical Hemolytic Uremic Syndrome (HUS) a serious and chronic disease that causes kidney damage, among other problems.
For the treatment of this strange pathology, the young woman must use the drug "Eculizumab" a remedy that in 2010 was ranked by Forbes as the most expensive in the world.
"We stayed inside, because, on the one hand, we did not know what it was like so we learned that it is a very rare disease, and we discovered, from the testimonies of other parents with children with this diagnosis, that the only cure she needed was Eculizumab, says Cooperati going to the girl's sister, Lorena Rodríguez .
For now, the family has the doses for this month, because there is availability in the public service of the country.However, there is no certainty as to how they will achieve the future, a situation for which they asked for help in social networks.
This adds to the fact that the young woman needs more than ten donations of blood per day of health.
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