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Various reactions appeared after the Supreme Court ordered the state to fund the expensive drug for a child a little over a year suffering from 39, spinal muscular atrophy.
case of Cristóbal, who suffers from this degenerative disease and whose treatment cost nearly 500 million pesos during the first year.
The mother of the child, Daniela Díaz, was denied treatment at Fonasa and the Concepción Health Service, because of its high cost. In addition, said pathology is not included in the law Ricarte Soto ]
After the judgment of the Supreme Court, the mother of Cristóbal badured that this decision was a happiness for her family and that she was unexpected.
The President of the Corporación Families Atrophy Muscular Spinal Chile, Paulina González said the Supreme Court's decision was a big step forward. However, questioned the government for failing to care for people with this condition.
In October, the Chamber of Deputies approved by 127 votes against a draft resolution asking President Sebastián Piñera to present a national policy against this disease by means of a plan. pilot with a special gloss on the budget next year.
Socialist MP Manuel Monsalve, promoter of the initiative, called on the government to take its responsibilities. The UDI deputy, Sergio Gahona, insisted that give priority to the right to life .
Parliamentarians are waiting to badyze their integration into the law Ricarte Soto, whereas in Chile there are 170 patients suffering from this pathology, of which 80% are boys and girls.
The Cristóbal case is the third to have been won in this case, while three cases are pending before the Concepción Court of Appeal.
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