'Five Feet Apart': Why Cystic Fibrosis Patients Can not Go to the Cystic Fibrosis movie – Entertainment & Life – Akron Beacon Journal



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It's a shaky business model: Your target audience can not see your movie in theaters.

The new teen romance "Five Feet Apart" features two young lovers with cystic fibrosis. But people who have the disease are likely to stay away from theaters for fear of infection.

"It's a real Catch-22," said Darlene Wagner, whose daughter has CF.

"People with CF really want to see this movie about their lives, but the risk is too high. The precaution is so strong to stay healthy. "

CF patients are at least 6 feet apart, they spread cross-infections through sneezing or coughing. Going to a movie theater means the possibility of unknowingly being within that distance of other people with CF.

The film, which opens up nationwide this weekend, Cole Sprouse stars and Haley Lu Richardson as two CF patients who fall for each other in the hospital. The title suggests that they break the barrier of the 6 feet rule.

Wagner's daughter, MaKarleigh Kotema, 13, said she has watched the "Five Feet Apart" trailer "like, 15 million times." For her, the appeal is all about the casting. She has a mad-crazy crush on the Cole Sprouse, who stars as Jughead in "Riverdale" on the CW, and is known to another generation as Cody on "The Continued Life of Zack and Cody."

MaKarleigh defines her deep affections in just two words: "He's cute!"

CF treatment

Every three months of her life, MaKarleigh and her mom have made the trek from Louisville to Akron Children's Hospital for regular treatments.

MaKarleigh, a seventh-grader at Louisville Middle School, takes three pills before breakfast, three pills at lunch, three at dinner and three before any snacks. At home, she has a therapy that she wears two to three times a day, which compresses her lungs and helps her cough out bacteria, and a breathing machine.

CF is a genetic disease that affects the lungs and pancreas.

"Dr. Gregory Omlor," said Dr. Gregory Omlor, a pediatric pulmonologist at Akron Children's Hospital and director of the Lewis H. Walker CF Center.

In your lungs, the mucus is very thick, so the bacteria would normally be coughed out in the lungs and causes chronic infection. Patients also do not have their food in the pancreas, so [the medications] replace their enzymes before they eat their meal. "

The hospital treats about 120 pediatric patients, from newborns to age 17, and another 120 adults, their oldest being 64.

Lor lor lor lor CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF CF Om Om Om Om Om.

Because CF patients can infect each other, extensive protocols are followed by separate patients. At Akron Children's, which is an accredited CF center, patients are treated by a team that includes doctors, nurses, nurse practitioners, genetic counselors, social workers and nutritionists.

"Years ago," said Betsy Bryson, a Pediatric Nurse Practitioner at ACH who has worked with CF patients for 38 years.

A major study in 2003 set guidelines for infection prevention, which were updated in 2013. Initially, staying 4 feet apart was suggested. It was later extended to 6 feet.

"Because of social media, there are other ways for patients to connect," Bryson said. "Now we have blogs and video chats and Facebook. There are support groups all over the country. "

tearjerker

"Five Feet Apart" is one of the world's finest in the world. "The Fault in Our Stars" from 2014. Richardson stars as Stella, a high school girl in the hospital awaiting a lung transplant.

She is steadfast about her meds and the rules, which is diametrically opposed to handsome bad boy Will (Sprouse), who is also cavalier about his treatment regimen. Despite their differences, the two CF patients fall for each other and, well, perhaps do not remain 6 feet apart.

It is unclear how accurate "Five Feet Apart" will be in portraying the CF world. CBS Films, producer and director, Justin Baldoni, writers Mikki Daughtry and Tobias Iaconis.

Their media representative said in an email that they did not have a say in the subject of the film and added that . … While several members of the CF have been involved in the development and production of CF nurses, we have been diagnosed with the Cystic Fibrosis Foundation.

To that end, the CFF is offering information at www.cff.org/fivefeetapart.

Bryson is planning to see the movie. "As with any movie," she said. "Whenever you watch a Chicago Med, 'or' Gray's Anatomy 'or any of those shows, as a medical person, I'm thinking, 'Are you kidding me?' "

Wagner is not sure when she will see the movie. They could wait until it is on DVD, or streaming, though they do not have TV cable.

"MaKarleigh is the youngest of eight, so we talked about having all the siblings go so badly in the theater," Wagner explained during a recent interview at Children's Hospital.

"She would definitely wear her CF shirt, and I would be thinking about it and just asking the audience, 'Does anyone here have CF?'

Wagner has four children and adopts children, ranging in age from 13 to 29. She has served as a foster parent and adopted mother to children who are considered "medically fragile." MaKarleigh, who turns 14 on March 30, was adopted when she was 3.

"When she first told me about 'Five Feet Apart,' we had never heard about a movie dealing with fibrotic cystic fibrosis," Wagner said. "And it was coming out in March. her heartthrob, it's a story about her life. "

When she is not in school, MaKarleigh likes to hang out at her best friend's house, play on her and take horseback-riding lessons. Whenever the movie or her crush are mentioned, a big, broad grin breaks free.

"It's hard to smile," she explains, "when someone's talking about Cole Sprouse."

Clint O'Connor covers pop culture. He can be reached at 330-996-3582 or [email protected]. Follow him on Twitter @ClintOMovies.

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