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After months of suffering, good news has finally arrived for Guido De Barros and his wife Caterina. After the death, six months ago, of their Sofia, the "little butterfly " which, with its history, had upset the whole world, another child was born, his little sister Gloria . The little girl, born on June 22, is fine. This was announced by his father on his Facebook page. "In her Inescapable Wisdom," wrote the 44-year-old architect, Sofia accomplished her destiny by evoking a 19459007 mission and supporting the times of a relay that we could never have foreseen. by providing the same care and the exclusive attention of the mother and the father to the little sister who was to be born.
The thought could not run thus to Sofia, who was only eight and a half years old when she flew into the sky. In order to save her, her parents did everything, even using the Stamina method but all their attempts to make her survive the disease proved to be useless. "Thanks to Sofia, we know from prenatal genetic surveys that Gloria will not have the enzyme deficiency that causes metachromatic leukodystrophy – continued the father – we are convinced that Gloria and Sofia already know each other very well indeed we are sure that their connection precedes their own conception, when Heaven predisposed events according to the known pattern only of celestial creatures.With the Wisdom of Sofia, we welcome the beauty of Glory into our lives. "
Sofia at birth did not present no problem The first symptoms of the disease began to manifest when he was a little over a year and a half. Over time, after starting to limp, became blind turning into a "butterfly child," as they are called the small ones affected by metachromatic leukodystrophy a very serious pathology characterized by l 39; accumulation of toxic substances in the nervous system. Since then, it has become the symbol of the fight against rare diseases especially thanks to parents who have always fought for it, even using methods not recognized by medicine. For her, the Ministry of Health also intervened, allowing him to continue the treatment already started even if there was no data on the scientific validation of the method yet. In fact, as revealed by the surveys, Vannoni's treatment was completely ineffective.
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