Rome, immunocompromised child after leukemia. Mother: "If Matteo takes measles, he ends up in the ground"



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He overcame leukemia but, despite ignorance, he still struggles: at age eight, after months of chemotherapy, he could return to school. but some of his companions are not vaccinated. Her mother has not stopped fighting for months: she has taken care of her baby first,and now he wants to see his right to return to clbad guaranteed. That's why he decided to talk, to tell everything. Starting from the scariest nightmare, the disease. On April 27, 2018, when the drama of Sara and her son begins: For two weeks, he gave himself the stomach in the morning, but I had thought of an intolerance to milk. Then the swollen and painful lymph nodes appeared on the neck, the bruises touched almost nothing and this strange color of the face. Finally the diagnosis: lymphoblastic leukemia type B

What did he do at that time?
A private specialist visit. The doctor immediately understood and the same day we were admitted to Bambino Ges. From the badysis the confirmation: had hemoglobin at 5. And with this value we die.

So your second home becomes the hospital?
Yes, my son started chemotherapy immediately and we left the hospital after 56 days. Then day hospitals and short hospitalizations started. But until May 2020, oral chemotherapy.

When did you hear that the disease was regressing?
On February 6, they told us that he could also go back to school.

angry with the principal?
Yes, I am really indignant. I understand that he has to handle a "hot potato" with my son's name, but he should not have made me a media case.

And with other mothers?
I keep asking one thing: how can one give birth to a child and then decide not to protect one's health? Fulminating meningitis for all. If he's taking a chicken pox he's doing it at the shelter and that's fine, we're used to it. But if you take measles, my son ends up in the ground.

And they did not understand that?
Many people have told me to stay calm as they would be in order. A mother of Bengal nationality has not understood anything about this because she does not speak Italian. So I brought the pizza maker home to school and I let it explain everything. She was also collaborating. But two moms said that I violated their privacy. And I see bad faith in that.

But is there a risk of losing the year?
No, because I found a precious "pearl", the teacher Emma, ​​who comes home as soon as she can. My son was entitled to 20 hours a week at home but the board did not have the funds.

Do you have a deadline?
The 10 expires the deadline to comply with the vaccines, 11 want certainties.

Does the child know about this situation?
No, baby: he can not wait to get back to normal.

February 23, 2019 | 7:33

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