Medical Newspaper – Campaign intends to raise funds for the investigation of Ichthyosis Lamelar



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A campaign crowdfunding promoted by United For Fighting Ichthyosis (UFFI), is underway to alert and sensitize everyone to Ichthyosis Lamelar, a rare skin disease

. crowfunding via GoFundMe, the largest fundraising platform in the world, allows all interested parties to make a quick and easy credit card donation, contributing to the research and demand of 39, a solution for these patients.

In turn, the funds raised are intended to finance the scientific team that developed this project, thus enabling research to be continued, supported by two phases: the collection of 100 thousand euros to test production at the same time. 39, industrial and profitable school and 1.9 million euros for the prototype of the cream.

Note that Ictiose Lamelar is a rare skin disease that affects about 50 thousand people worldwide with a diagnosis difficult to achieve and no cure. It is a non-contagious genetic disease that affects patients throughout their life and is characterized by the inability of the skin to produce an enzyme – TGM1 – that acts as a "glue", contributing to the functioning normal of the skin and avoiding

Ichthyosis Lamellar is the most serious form of ichthyosis and its carriers are often victims of prejudices.

For more information, check out the online platforms: www.itatouffi.org or www.gofundme.com/comitatouffi.

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