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(Newser)
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Priscilla Maldonado was deprived of a happy New Year's moment – and things have barely been simplified. The 25-year-old Texan mother had just given birth to her son Ja-bari at the San Antonio Methodist Hospital when the delivery room was killed and her newborn was taken away . "I was worried," she said to the Washington Post. "I was confused." She soon saw her heavily bandaged son connected to wires and tubes in resuscitation, where doctors claimed that he was born without skin on the hands, feet, back, arms, chest, and neck . Diagnosis: Congenital cutaneous aplasia, a disease that leaves babies skinless and sometimes underlying bone structure. Maldonado and her husband, Marvin Gray, were invited to bring back home and let him die. "I felt lost," she says.
But Ja's bari was transferred last week to the Texas Children's Hospital in Houston and received a new diagnosis, Epidermolysis Bullosa, a rare genetic disease that weakens the skin and even turns small erosions and blisters. Medicaid had initially stated that the insurance would not cover the transfer of the hospital, but it changed decision after the intensification of media coverage. San Antonio Express-News. While Ja & bari is supposed to live, an expert says he faces a "very difficult life", which includes surgeries and a "disfigurement". Indeed, the eyes of the child of three months are still closed and his fingers and toes remain welded. But the Maldonados, who work at a fast food restaurant in San Antonio, say they pray every day and have a GoFundMe account of nearly $ 80,000. People. They will fight for Ja "bari" until the end, "says Priscilla. "Until he gives up." (Read more stories about the newborn.)
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