The mother can be decapitated internally at any time

A mother with an extremely rare tissue disorder explained how she could be decapitated internally at any time.

Amanda McTaggart, of Mullaghbawn, Northern Ireland, suffers from both Ehlers-Danlos syndrome, a rare genetic connective tissue disorder, and a trigenal neuralgia, described by the NHS as "a shock electric to the teeth or jaws of the jaw.

She has now shared distressing pictures of her in extreme pain, conditions let her in, unable to care about Ethan, her four year old son.

Amanda McTaggart, of Mullaghbawn, Northern Ireland, with her four year old son Ethan, while she does not suffer debilitating pain

Amanda is suffering from a rare connective tissue disorder called Ehlers-Danlos syndrome. It is a progressive condition without treatment in progress or specific treatment and which may be decapitated internally.

Amanda must take 36 tablets a day just to cope with the extreme discomfort and excruciating pain of living in these conditions.

Amanda needs to take 36 tablets a day just to cope with the extreme discomfort and excruciating pain of living with these conditions.

Because of her Ehlers-Danlos syndrome, she presents with craniocervical and atlanto-axial instability, which makes her beheaded inside due to "daily" dislocated joints.

She also has trigeminal neuralgia attacks, which can occur hundreds of times a day, making it one of the "most painful conditions of all time".

What is trigeminal neuralgia?

Trigeminal neuralgia is a sudden, severe facial pain. It is often described as "sharp pain or electric shock to the jaw, teeth or gums".

It usually occurs in the form of unpredictable attacks that can last from a few seconds to about two minutes. Attacks can stop as suddenly as they begin and occur regularly over time.

It is possible that the pain may improve or even disappear completely for several months or years at a time (remission), although these periods tend to shorten over time.

Consult your doctor if you experience frequent or persistent facial pain, especially if conventional painkillers, such as paracetamol and ibuprofen, do not help you and that a dentist has ruled out any dental cause.

Every year, about 10 out of every 100,000 people in the UK develop it

In January, during a visit to the emergency hospital, Amanda spent two days in excruciating nerve pain that even made it difficult to eat.

To manage the pain at the hospital, she was subjected to morphine.

However, she is now allergic to the painkiller, as well as to a long list of other life-threatening diseases, and is currently wearing a carbon filter mask to help reduce the amount of triggers coming into his body.

Amanda also uses a wheelchair and a collar to stabilize her spine and neck.

Her family worries that she is starting to run out of options to tackle a terrible pain.

In a message posted on the GoFundMe fundraising site, a family member explained the "absolutely horrible toll" he had for their family.

They said, "If the level of instability worsens and can not be managed with a neck brace and a specialist in physiotherapy, I will look at major surgery overseas.

"This fusion of the cervix of the spine is practiced only by two surgeons in the world, one in America and the second in Spain. The surgery alone costs £ 10,000.

"I'm sure you can all understand that as a family, we want and need to help Amanda as much as possible, because Amanda has a gorgeous 4 year old boy that she does not have. is not able to take care of herself by the minute.

"It's our goal and the goal for Amanda to enjoy seeing her beautiful little man, Ethan grow up.

The family has now created the donations page in the hopes of contributing to the coverage of medical expenses and access to highly specialized treatments, which are currently not funded by the NHS.

Donations had reached £ 6,393 at the time of writing.