Babies without arms of the Ain: controversy around the one who revealed the affair



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"Protect those who warn about a health risk", said the Green MEP Michèle Rivasi Thursday at a press conference in Paris. Alongside two former ministers of Ecology, Delphine Batho and Corinne Lepageshe expressed her "support"to Mrs. Amar, qualified as"whistleblower".

"Ms. Amar is not a whistleblower", replied the epidemiologist Ségolène Aymé in a statement. In this very virulent text, this director of research emeritus at Inserm blames "lies"and"irresponsible attitude"from Mrs. Amar.

"slanderous attacks", responds the interviewee Emmanuelle Amar directs the Remera, the oldest of the six registries of conbad deformities in France.Located in Lyon, this structure was founded in 1973 after the thalidomide scandal, anti-nauseous who had gave birth to thousands of children without arms between 1957 and 1962.

In particular, the registry helped to show the consequences of taking Depakine anti-epileptic medication during pregnancy. This summer, he revealed that several babies were born in recent years without hands, arms or forearms in a restricted area of ​​Ain (7 births between 2009 and 2014). Two other groups of cases were observed, in Loire-Atlantique (3 between 2007 and 2008) and in Brittany (4 between 2011 and 2013).

The role of pesticides

After an inquiry, the health agency France Public Health concluded at the beginning of October that the number of cases of Ain was not statistically superior to the average
National. Conversely, there is, according to her, an excess of cases in Loire-Atlantique and Brittany, but which remain unexplained.. These conclusions are disputed by Mrs Amar, supported by ecologist representatives like Mrs Rivasi or Yannick Jadot. Despite the absence of any scientific evidence, they believe that pesticides could be the cause of malformations.

The fact of chance?

"Ms. Amar makes sure to cast suspicion on everyone, in the greatest conspiracy tradition", denounces Ségolène Aymé, who is authoritative in her field since she chairs the committee responsible for evaluating the registers, including the Remera.It points out that the existence of a group of cases (called" cluster "in epidemiology) can In the end, it's a matter of luck, for this expert, "the right attitude is to continue to monitor to ensure that the malformation rate does not increase over time".

"If I were a media manipulator, we would not have arrived at the end of Remera", replies Ms. Amar, who will be auditioned Tuesday in the National Assembly.For several months, she is concerned for the future of its structure, to which the Auvergne-Rhône-Alpes and Inserm have withdrawn their funding. It remains only the funds of Public Health France and the Agency for Medicines (ANSM), or 115,000 euros per year while it would take 250,000, according to
she. "Funding has been removed because of the inconvenience"she insists.

On the side of the region, directed by Laurent Wauquiez (LR), it is said that it is a "lack of justification for spending public funds"That explains the non-payment of the subsidy of 2017. Ms. Aymé, she says that the funding of the Inserm were eventually withdrawn because the director of Remera had not implemented measures claimed since 2012. It was "collaborate with the European network of malformation registries"and back to a research team." The Director General of the Public Health Agency France, Francois Bourdillon, for his part denounced Friday "a slanderous campaign"aiming at the agency, while considering that Remera funding should be"maintained in scientific conditions that are clear".

Horrible attacks

However, Amar can count on the support of Remera's scientific council, which denounced in a statementodious attacks". "He is someone brilliant, who has courage and obstinacy"says Elisabeth Gnansia, president of the scientific council and former director of Remera.

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