The "cold" of the woman turned out to be a life-threatening illness that made her cry with blood

One woman recounted that she was convinced to have contracted leprosy after waking up one day with cold symptoms, blood flowing from her eyes and mouth and chunks of her nose. flesh falling.

Jo Daniels, 42, was diagnosed with a disease that, according to genetic experts, would affect one in a million.

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It all started in February, when she started to cough and badumed that she was just a cold.

However, over the next five days she began to develop large mouth ulcers and pain marks around her eyes.

His general practitioner attenuated his measles symptoms and gave him antibiotics before asking him to come back for tests.

Jo said, "I knew it was not measles, though.

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"At this point, my symptoms were so severe that I had to swallow blood clots that accumulated in my nose and I was constantly spitting blood. I could barely see, because my eyes were bleeding. I was terrified.

"I was convinced that I was going to die. The symptoms were horrible and nothing like what I had heard before.

"It was like having severe burns all over my mouth, nose and eyes and I was in constant pain, I could not eat or drink anything except small amounts of water.

"At worst, some parts of my face were starting to fall and I remember one day, I found a big chunk of something in my mouth – which I then realized, c & rsquo; Was a little inside my cheek. It was as if I had leprosy.

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After blood tests at Swansea's Morriston Hospital, the doctors confirmed that she was actually suffering from Stevens-Johnson Syndrome, a potentially fatal disease that affects the skin, mucous membranes, bads and bads. eyes.

It was the first case they had treated and they thought that Jo's condition had been caused by an infection to which his immune system was reacting violently.

They prescribed more antibiotics and antivirals.

But Jo's symptoms continued to get worse before they improved.

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"I could not leave the house or do anything because I could not see," said Jo, neat throughout his illness by his mother, Diane.

"I tried to eat soup and jelly, but it was too painful to touch the ulcers all through my mouth and my throat. So I did not eat anything for all that time except water. "

Once her wounds began to heal, Jo had to deal with large pieces of dry skin falling from her lips and mouth, and she began to worry about choking with her own flesh while the Inside her mouth was starting to peel.

After three long weeks, she could finally see and eat again.

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But the experience has traumatized him.

"My vision is now very bad because of the wounds that were in my eyes," she said.

"But more than anything, I have the feeling of having completely lost confidence in myself and my appearance. Anyone who had not seen me since before this happened, said, "What happened to him?", Because it changed my appearance.

"Now, I have bad teeth because my gums have regressed, my eyes are almost always swollen and I can not wear makeup because I do not see well enough.

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"I was a very sociable person, but I was made agoraphobic (that is, I do not want to leave home) because of this terrible disease."

And she is also afraid of being struck by this disease a second time.

"It is so rare that there is really so little information available about it," she said.

"Even health professionals can not really talk to me at all and I feel that I can not sleep as long as no one can give me answers and let me know that it does not get me wrong. will never come again. "

But she is determined to try to find her life.

"The disease has stolen all this year and may well take more," she said.

"But I must remain determined to beat him.

"It was like going to hell – but I have to believe I'm going out the other end."

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